Recent Posts

av canal surgery down syndrome baby

Carson’s Atrioventricular Canal (AVC Defect) Surgery Story

(If you’re looking to meet other parents of children with heart defects, check out this Facebook group.) One of the most common medical condition associated with Down syndrome is a congenital heart defect. We talk about this and a few other conditions in Four Medical Concerns For Babies Born with Down Syndrome but we wanted [Read More…]…

brother with down syndrome-hugging

A Brother Makes a Great Best Friend

We’re in a sweet season of life here in the Smith house. Jaxten (Noah’s brother) is 3, Noah recently turned 7, and my wife recently gave birth to our new son (Koen) who’s almost 8 weeks old. As Noah and Jaxten have gotten “older” it’s been fun to watch them become such great friends. They [Read More…]…

he came down nativity play

He Came Down | A Story of Hope

My wife recently told me about a video she came across produced by “Speak Life.” The video shows a mom of a child with Down syndrome talking about how she feels. She explains she knows it’s not her fault that her child was born with Down syndrome, yet wondering why “this” happened to her. It’s very [Read More…]…

father and son with down syndrome

Noah’s Growing Up

The picture above was taken shortly before Noah’s 7th birthday party, and he looks so grown up! The reason he looks so grown up is because he is growing up! In the years since I started this website, Noah has learned how to walk using treadmill therapy, sat up on his own, and even took his first [Read More…]…

Down Syndrome Resources

chef with down syndrome YouTube channel

Cooking with Kitty: A YouTube Chef with a Dual Diagnosis

I love seeing people with Down syndrome (and Autism) doing awesome things. As a technology nerd … [Read More...]

companies that hire people with disabilities

46 Companies That Hire People With Special Needs

Before I became the dad of a child with Down syndrome I didn't pay much attention to companies that … [Read More...]

More Down Syndrome Resources....

Down Syndrome Therapy

how to help child stand up on their own

4 Activities to Help Your Child Stand On Their Own

http://youtu.be/39iC8Wu1d8I We're proud to announce that Noah reached another major milestone … [Read More...]

how to get baby to use sentences put words together with sign language

Signing Update: Noah’s First Sign Language Sentence!

We're a huge fan of teaching Noah baby sign language to help him communicate with us. We have been … [Read More...]

More Therapy Posts...

Down Syndrome Parenting

meaningful work people with down syndrome

How a Chick-Fil-A Employee Changed My Idea of “Meaningful” Work

Last week I was eating lunch at a local Chick-Fil-A when I noticed a young women with Down syndrome working at this particular location. (As a parent … [Read More...]

A (New) Letter To Our Son’s Teachers On His First Day Of School

It's hard to believe it's been almost three years since Noah first started to school (and we wrote our first letter to his teachers)...time really … [Read More...]

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