I have to admit that prior to becoming Noah’s Dad I had no idea that March 21st was World Down Syndrome Day. (So don’t feel bad if you didn’t know either.) 🙂
But it is. And if you will give me about 3 minutes of your time, Noah and I will tell you what it’s all about, and try to give a quick answer to the question, “What is Down syndrome?”
We put together a short video to tell you a little bit about World Down Syndrome Day and why the date 3:21 is significant. I hope you find it informative and enjoyable! And hey if not, no worries. You’ll still get to see a cute little boy for a few minutes that I’m sure will brighten up your day. So it’s a win either way. 🙂
And if you like videos, be sure to check out Noah’s Dad on You Tube where you can watch all of our videos!)
By the way the cool shirt Noah is wearing in the video was given to us by our friends at the National Down Syndrome Society when we visited their offices in New York a few months ago. You can pick one up for yourself from Rhyme Clothing.10% of every shirt purchased goes to the National Down Syndrome Society to further Down Syndrome Awareness! Pretty cool, huh?
Also if you are new to the world of Down syndrome, welcome. We started this website to give the world a look into what life is like raising a child born with Down syndrome by posting a daily one minute video about our life. We hope you will subscribe to our daily videos and take part in the story we are sharing. We also hope you will visit Noah’s Dad Facebook and Twitter Stream where you can meet thousands of families sharing their stories as well. Feel free to drop by, say hi, and ask questions; we’d love to meet you!
If you are raising a child with Down syndrome I hope you will take a minute to share this post with someone in your life who isn’t. Hopefully in doing so they will learn more about Down syndrome, and how this story isn’t a sad one. But a very beautiful one.
What are you doing to help raise awareness for World Down Syndrome Day? Feel free to post any pictures or videos in the comments below!
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He does brighten up my day!! Love you Noah!
Thanks! He can't wait to see you. :)
Great post, thanks so much for sharing your story and all that you are doing!!!
@ErinMC4:disqus Thanks! It's our pleasure. :)
Happy World Down Syndrome Day to all!
Thank you Rcik and Noah for the great video.
@35e6bac64d388049c0628301833db62c:disqus Thanks so much! And happy World Down Syndrome Day to you as well. :)
I watched te video with my son Gavin (same age as Noah) and the entire time he was talking to it and smiling trying to take my phone away or trying to get to his friend in there :-) and even waved bye bye to you both which he doesn't do often :-)
@030cffada93b1354e3ae40c4e42b457f:disqus Awww, thanks for sharing that with us. How old is Gavin?
Thanks for all you do to bring a positive awareness to Down syndrome. What is Noah's birthday? Isaac is 15 months too. His birthday in 11/30.
@2eb65c31bcf94bb413c07376376537ee:disqus Wow, they are neck and neck! Noah was born on Dec 15 (if you go back to the very first page of this blog you can see his very first video.)
Was your son born with Down syndrome? If so, did you guys know ahead of time?
My son was born with Down Syndrome on 02-29-12. He is 21 days old today.
He is my first born.
He has been in the NICU since he was born due to an AV Canal defect which was making it hard for him to breathe and eat on his own. He had an oxygen tube and feeding tube for nearly 3 weeks. I am happy to announce that since Friday the 16th he has been off of the oxygen tube and as of Monday he has been off the feeding tube. My husband and I give all the glory to God, we have been praying for baby Royal non stop, we really did not want him to come home with a g tube or oxygen tube.
He is eating like a champ now and his doctor told us he can come home this week.
I am so excited and nervous, the nurses at the NICU have been amazing in caring for my son, they have also shown my husband and I so much support and now its time for us to do it on our own, with
We are new to the world of Down Syndrome and your blog has been a tremendous beacon of light for families new to DS or not. I never imagined I would be taking this journey with my new family and now I am so eager to share his life with all our friends and family.
Please continue to pray for baby Royal's heart, I know God can heal him.
I look forward to reading about Noah and watch him grow,.
God Bless you and your beautiful family.
Xindy and Logan Holliday
your story is very much like ours..My son also had av canal defect. All your trials now will be rewarded once he receives his operation. Marcos is such a healthy boy and you will be amazed at the progress your child make. Know that you are not on this journey alone.
Maria and Al Rosales
@c96040b73f1fea1c442077c851432888:disqus Wow, thanks so much for the very kind and encouraging words. :) First I want you to know that I just prayed for you and your family. I also thanked God for letting Royal be born to such loving parents who trust in the Lord. That is fantastic!
@e6eac8929334e84597b0aac8d30434cb:disqus
nd, I'm so glad he is off the feeding the tube, and I hope he is ready to come home soon also. PLEASE keep us posted on how things go with all of that. You can come right back here and post in the comments. Also I'm not sure if you have seen our Facebook page, but we have over 13 thousand people on there who are amazing. We'd love for you to post a picture of Royal, and say hi to everyone if you'd like. Our page is http://facebook.com/noahsdadcom/
Where are you guys from ,and how did you learn about our website? I also enjoy learning how people connect with us. Please let us know if there are any questions we can try to answer for you as well.
I'm not sure if you saw this new parent guide, but there is some great information about Down syndrome that you may enjoy taking a look at ---> http://noahsdad.com/new-parent-guide/
Hello Xindy,
I have a little brother with Down Syndrome. Alike your little one, my brother also had difficulty breathing. He also was born with an AV Canal defect. He underwent open heart surgery at 4 months old. We were told he would need open heart surgery about every 10 years depending on how his heart's doing, growth etc. My family and I were incredibly sad and afraid but we knew it was for the best.
It's been 7 years now since my brother's surgery and he is doing great! We actually took him to his annual Cardiology appointment this morning and the doctor's were pleased with how my brother is doing! They encouraged us to push him to run and walk longer distances (my brother can be a little lazy). I know parents are sometimes worried about over exerting their child, because my parents are still worry warts, but trust me your little one will be just fine. Seven years from now you will be using words similar to mine to encourage a family one day. You too will be sharing your wonderful news about your little man’s health with a family who may need encouragement and inspiration. Stay positive, pray, and continue to give your beautiful baby all the love in the world.
I am not sure if you are from NYC but here is my brother's heart surgeon:http://cardiac-surgery.med.nyu.edu/about-us/heart-surgeons/ralph-s-mosca.
He did an amazing job on my brother. I am sure there are many great Cardiologist out there, but just thought I’d share our cardiologist since my family is forever grateful to this man.I am glad your little one is off the oxygen tube now. I am sure the little guy will be fine. Best of luck to your family and my prayers will be with you all!
-Denise
My daughter was born with Down Syndrome and also had an AV canal defect. She had surgery at 8 months old and took medications for many years. We were also told that she would probably have to have it redone periodically as she grew.. As it turned out, she has not had to have any more surgeries and was able to get off her medications in her teens. She had a residual murmur for many years but at her last check-up he could not hear anything.
She is an active 28 year old and loves to participate in Special Olympics in track and bowling.
Doctors can do amazing things and I'm sure that they will help baby Royal. Our prayers are with you and your beautiful baby. Enjoy every little thing he does. They bring a special kind of joy to life.
P.S. My daughter is very proud of being Down Syndrome (and her scar.)
Xindyv,
I'm not sure if you signed up to receive emails when someone replies to your comments, but I wanted to see how things are going for baby Royal and his heart. I hope you can update us. :)
Very nice video Rick!
@5cee2e4f92cdddf1b5c900843bbc09ce:disqus Thank you very much! :)
Noah shines. Life is a gift and privilege from our Lord.
@f0536d71cf73a021f28569b055c3d163:disqus Thanks Dr. Horrell. We appreciate your friendship and encouragement! Thanks for loving our son and our family. :)
Thank you for everything you are doing , i have a niece with down syndrome .. She is three years old and loves learning new things and meeting new people .. Thank you so much ..
Thanks so much for the kind words. You sound like a great aunt! :)
Noah is amazing! :) Seeing his pictures on my facebook wall makes my day that much better! <3
Hey thanks. It's a lot of fun being Noah's Dad! Do you have any children?