To My Son Noah On His Six Month Birthday

Our son was born with Down Syndrome

Dear Noah,

I can’t believe you are six months old today.  Without a doubt this has been the best six months of my life.  When your mom and I got married I couldn’t imagine that it was possible to love anyone else the way I love her, but Noah you have changed everything I’ve known about love.  I love you in the deepest part of my soul, there are no words to describe it.  I was reading back in my journal tonight and on Dec 15 2010 at 2:45 am (almost the time it is now) I wrote about all of the emotions I was feeling.  It was just a few hours before we would leave to the hospital to welcome you into the world.  I couldn’t sleep.   I was excited, nervous, scared, anxious, and a million other emotions.  The morning couldn’t come fast enough.  We got to the hospital and minutes felt like days.  I just wanted to meet you!  After a day of waiting,  I finally got to see you.  I’ll never forget the first time they placed you in my hands.  You were wrapped up in a little blue blanket, and a blue and pink beanie on your head.  I held you, and I wept.  You were perfect.  You were my son.  It was love at first sight.

They took you away and didn’t you bring you back.  We didn’t know why (at least I didn’t.)  I was so excited!  I wanted to see you.  They told us they were cleaning you up and you’d be with us any second.  Finally our Doctor came in and said you were born with Down Syndrome.  I didn’t know what Down Syndrome was.  I was scared.  I cried.  A lot.  I was so worried.  I didn’t know if you’d ever know me.  I didn’t know if we’d every play together.  Part of my weeping was for you.  For what I thought you were going to miss out on.  Boy, I was so wrong on all of that.

After your mom and I wiped the tears off our eyes they brought you in.  Your mom smiled, big time!  She told me afterward that there was no way she was going to be crying the first time she held her son, and she didn’t.  Oh man, I don’t think either of us put you down the entire time we were in the hospital.  Actually , I don’t think we have put you down since you’ve been born! 🙂

We came home and learned everything we could about Down Syndrome.  We prayed for you – non-stop.  We still do.  Most of all we loved on you, and you loved on us.  Things were starting to settle; until we got that call.  Your new born test came back positive for GA-1.  It was going to take three months to to know for sure, and so we waited.  Noah, I’m going to be honest, I was sacred.  More scared then I had every been in my entire life.  GA-1 looked scary.  In fact they said if you had GA-1 in addition to Down Syndrome you may have been the only kid in the world with both.  That sacred me even more.  During those three months I prayed and worried more then I ever had in my entire life.  I also learned more about God during those three months then in four years of seminary.  I learned to trust God.  With everything.  Including you.  And so I trusted Him.  Man it was hard.  I break down into tears just thinking about it that time.  I feared for you Noah.  I wondered why us.  Why were we going to be the people who had to have a son with Down Syndrome and GA-1?  Wasn’t Down Syndrome “enough?”  I googled stuff.  (By the way, promise me you’ll never google serious medical stuff – ok?  Just trust me on this one.)  The more I googled, the more scared I got.  The more scared I got, the more I prayed.  I asked my friends to pray.  Heck, I even fasted.  I’m not even sure why I fasted, but I did.  I just wanted to do anything I could do to show God I was serious.  (Although  God was looking at  my heart, I didn’t have to do any of that.  God doesn’t work on a merit system.)

Turns out, you didn’t have GA-1.  Now we had to work on your heart, ears, eyes, and a bunch of other “stuff.”  In fact tomorrow we have your six month check up, and we get the results of your CBC test.  The thought of you possibly having leukemia scares me, but even if you do; God is in control.

Noah, I love you so much.  I’ve been waiting my entire life for you.  I can’t wait to study The Bible with you, and to tell you about how awesome Jesus is.  That is one of the coolest things a dad can do with his son.  Mine never did that with me, I wish he would have.  You don’t have to worry about that though.  Trust me.

I’m sorry you’re birthday is so close to Christmas.  Your friends will probably be out of town during your birthday.  That’s why you’re going to get two birthdays!  Yelp, that’s right – two birthdays!  One on your “normal” birthday, Dec 15; then another on your half-birthday, Jun 15!  So consider this letter your birthday present in that I’m making it official – two birthdays!  I bet you don’t have any friends whose parents throw them a half-birthday party!  So you win!

Noah, I’m a first time dad so I’m not sure how good I’m going to do at this whole being a dad thing..  I’m probably going to mess up at this sometimes a lot of the time.  So go easy on me, ok.  My heart can’t take much of you being sad or mad at me, ok.  I hope that even at six months old you know how much I love you.  I’m so thankful for you.  You have changed my entire life.  I can’t stop thinking about you, playing with you, praying with you, looking at you.  You’re my son.

Happy Half Birthday to you Noah.  The last six months have been a present from you, to me.  Thank you for coming into the world and being my son.  For making my life better.   Your life is a gift from God to us.  I am so proud of you.  You have to work so much harder then all of the other “typical” kids.  It doesn’t seem fair, but you handle it so well.  I can’t get over how radiant your smile is, and how your face lights up every time I pick you up.  I LOVE IT!!!  You were born just perfect for me.  You are just what I wanted in a son; in fact better.  I tell your mom often how you are way cooler, cuter, loving and funnier, then I would have ever imagined.  I look forward to of our life together.  Noah, you are the best son a dad could ask for.  Thank you for letting me be your dad.  I love you.

Your daddy.

Playing with my son

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About Rick Smith

Hi, I'm Noah's Dad and I'm passionate about giving the world a window into our life as we raise our son who was born with Down syndrome. I also enjoy connecting with other families, so let's stay connected.


  1. Again, i’ll say this. Documenting your childs life is one of the greatest things you can do as a father these days. Think. He’ll get older and read this..WOW! 🙂

  2. Sylvia Caruso says

    Happy 1/2 birthday sweet Noah!!! 🙂

  3. Taylor Hammond says

    Omg! Could that baby be any cuter???!! Happy half birthday, little man! You clearly bring your parents so much joy. And, you are so stinkin’ adorable!!!

  4. How I love reading and looking at all the adorable pictures, and experiencing your life with Noah! Sometimes I cry, but then I rejoice and thank God you KNOW God and can tell Noah all about His loving Heavenly Father. Only until you have children do you truly understand how much God loves us. If we can love a child ‘that’ much, how much must our God love us and to give His Son up for us so we can be reunited with Him! Thank you for these posts/updates/pictures. They make me stop and think of how lovely life really is! I forget the awful things of the world, and praise God for the “REAL” and important things in this life. I will keep checking in on Noah, and his dad and mom! In His love, Elaine 🙂

  5. Heather Combs says

    Hi Noah’s dad! I have LOVED looking through this wonderful site, thnak you so much for sharing Noah with us. My 1 year ols son, Isaac, has Down. I have a FB fan page for him “Eye on Isaac, Genetically Enhanced w/ Down syndrome.” You and I have the same outlook about our precious children! GBU!

    • Heather,
      Thanks so much for your comment! I’m excited to check our your Facebook page!

      We do a daily one minute video about our son who has born with down syndrome. We hope to give the world into what life is like raising a child with down syndrome. It’s been a lot of fun!

      Looking forward to getting to know more about your family. By the way we also have a Facebook page and would love for you to post a picture of your little Issac there! —–>

  6. your an awesome dad, i'm sure u will be great!

  7. I’m reading this on the day my son Phineas (who also has DS) is turning six months old. Thank you for this—-it’s absolutely beautiful, and echoes how Phineas’s father and I feel!

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