I forget Noah has Down syndrome.
We didn’t find out Noah was born with Down syndrome until about four hours after he was born.
So I’ve known Noah when I thought he had the same number of chromosomes as you and I, and I’ve known Noah after learning he was built with a little something extra.
And I can say with absolute certainty that there is no difference in the way I see him. Not at all. It’s 100% same. He’s my son.
And I’m head over heels in love with him.
Oh, and I wouldn’t change one chromosome about him. seriously.
Doctor’s Appointments Are My Kryptonite
Not long after arriving home from the hospital with Noah the strange mix of emotions we felt after learning he had Down syndrome went away, and Noah was just Noah.
We saw him no differently.
He wasn’t “our son who has Down syndrome”.
He was simply “our son.”
Sure, we had to take Noah to a few more appointments than other babies. But it just sort of became our new normal. We didn’t think about it much. Down Syndrome faded into the background of our life, and to be honest we don’t even really give it much thought.
Noah just became Noah.
And since then we really don’t even think about Down syndrome all that much….
….until Doctor appointment days.
Hi I’m Noah’s Dad, And I’m A Worryaholic
Ok, I’ll admit. I worry too much. I’m a worrier. I worry about stuff. Ok..I feel much better now.
In fact, if you happen to know of a nice worry rehab clinic somewhere (preferably in Hawaii, or the Bahamas) please let me know, I’ll be glad to go. 🙂
We had an interesting first few weeks of Noah’s life. It seemed like every appointment we went to presented us with a new challenge.
I usually don’t even think about them (since we schedule them so far in advance) but when I see that little reminder pop up on our calendar, my stomach starts to tighten up a little bit.
I try really hard to just trust God and not be anxious, but that’s easier said then done.
I worry about the doctor finding some new issue.
I worry about him not gaining weight.
I worry about his cbc test coming back positive for leukemia?
I worry about the hole(s) in his heart not closing up on their own.
(Which then causes me to worry about what if they have to do heart surgery on my little boy….)
I worry about hearing tests….What if he is deaf?
I worry about vision tests…What if he can’t see?
I worry about speech tests. What if he can’t talk?
I worry about a million other what if’s?
Like I said, on most days I totally forget that Noah has Down syndrome. I don’t even think about it….
…except on Doctor appointment days, I do.
I’m not sure why doctor appointment days bother me so much. God has always been so faithful and gracious towards our family, so have no idea why I worry at all.
But I do.
Learning To Parent, Means Learning To Trust God
I’m quickly realizing that learning how to be a parent, and learning how to trust God in all areas, go hand in hand.
I wish seminary offered a class called, “How to never worry about your child, and be super awesome at trusting God in one semester.” I’d take it.
Oh…let me get to the good news…
God showed his amazing grace to us again today with two fantastic doctor’s appointments.
Noah’s hearing test came back great, as did his visit to the urologist.
God is good. How long will it take me to fully realize that’d
How about you moms and dads, (or whoever else) are you a worrier? Come on, the fist step is admitting you have a problem. 🙂
How do you deal with the “scary” stuff that comes along with parenting? We’re rookies at this whole being parents thing…so your wisdom is always welcome!