What To Say To Someone Who Has Received A Down Syndrome Diagnosis

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down syndrome diagnosis what to say to a friend

In 2007 the American Congress of Obstetricians and Gynecologists (ACOG) changed it’s guidelines to recommend fetal chromosomal screening be offered to all pregnant women regardless of age because of new noninvasive, low-risk screening tests. (By the way, here’s 25,000 reasons why you shouldn’t worry about the results of a Down syndrome screening test.)

When we received the news that our son, Noah, was born with Down syndrome (we didn’t have a prenatal diagnosis) one of the first things my wife and I tried to do was figure out a way to take the pressure (and awkwardness) off our friends and family by sending out a “spoiler-alert” blog post. I think it helped break the ice, and helped our friends know it was ‘ok’ to talk to us about the news of our son’s extra 21st chromosome.

Do you know what you would say to a friend who has just received a Down syndrome diagnosis?

One of the effects of the recent changes in the ACOG’s guidelines is that more and more women will receive a Down syndrome diagnosis. In fact, you may have had a prenatal Down syndrome diagnosis yourself, or known someone who has.

Our Facebook page is filled with thousands of parents who have received a Down syndrome diagnosis themselves. And I wanted them to help me come up with a list of things one might say to someone who just received a Down syndrome diagnosis, so I asked them the following question:

What would you say to someone who just received a Down syndrome diagnosis?

What I got in return was over 300 suggestions of things to say to someone who just found out their little baby will be born (or was born) with Down syndrome. I’m posting all of the comments just as they were submitted, and you’ll see was quite a variety of responses.

I hope you find the list encouraging, helpful, and hopeful!

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The Ultimate List Of What To Say To A Friend Or Family Member Receiving A Down Syndrome Diagnosis

  1. Angela: You can do it!!
  2. Amber: You have just been blessed with a child that will always love you, amaze you every day, and never stop making your life better.
  3. Amie: They are one of the lucky, choosen few Blessed by God!
  4. Whitney: What a blessing!!!
  5. Amy: Congratulations! You are very blessed!
  6. Nigel: Down syndrome today is not the Down syndrome of yesteryear.
  7. Sandee: ‎”you are blessed!”
  8. Kim: ‎”Get ready for an amazingly fulfilling journey”
  9. Michael: Blessed !!!!!!!!!! You may not know it or think it YET , but you are and shall always be Blessed !!!
  10. Maria: You have been blessed.
  11. Chisato: your child is PERFECT just the way God mad him/her! Don’t let any one else tell you different.
  12. Michelle: You will be surprised how it turns out. Much different than you are thinking. Your baby will be a child just like all other children. He or she will have some limitations but you never know what those will be with ANY child. Pray for your baby and love her (or him) with all your heart. It will be YOUR BABY. And a child of God.
  13. Kim: God is in control.
  14. Dani: You’re gift just became even more special then you once thought possible….with hard work comes great reward! ♥
  15. Lonna: You’re going to have an amazing adventure :)
  16. Jemma: Congratulations! Your beautiful baby will amaze you everyday. Each little milestone will make you the proudest parent ever!
  17. Mary: You have been chosen to receive a true blessing from God.
  18. Lizette: I know your are full of worry now but once you have your little baby in your arms you will wonder why you spent so much time worrying. It will be beautiful!! I have had 5 months of beautiful in my little man Lucas and I woudn’t trade it for anything!
  19. Mary: Thats hard to say, I guess it would depend on the persons with the child. love lots of love !!
  20. Alyssa: Congratulations!
  21. Julie: Congratulations! A beautiful baby to love!!
  22. Noah: Nothing gets in the way of a parents love for their child. No mental or physical issues are goin to interfer with how you love & care for your child.
  23. Dan: BE THANKFUL
  24. Martina: CONGRATULATIONS!!! Your life will never be the same again, it’s about to get better.
  25. Micah: I’ve always felt that God puts people with Down syndrome on this Earth to show us how to love. Jesus loves people regardless of size, color, or wealth, and I think that people with Down syndrome exude that love down here on Earth!
  26. Jeannette: This baby will be the best thing that ever happens to you. Your strength when you’re weak, your affirmation when you’re vulnerable, your motivation when you’re weary. Life is always beautiful, no matter the circumstances.
  27. Debbie: You gift from god as arrived! He/She will teach you and everyone around so many things that you would never learn otherwise :)
  28. Allison: You loved your baby before you knew it had down syndrome. Nothing has changed. Your baby always had down syndrome. And you will always love him/her.
  29. Ancora: blessing in disguise
  30. Kimberly: It’s not a death sentence and it’s not the end of the world. And it’s not your fault. Your eyes are about to be opened to a whole new world. This child that you are bringing into the world is a gift from God. This child will teach you to stop and appreciate the little things in life, to celebrate small accomplishments, and to laugh and love from the bottom of your soul. It’s not always an easy road and you will have to be a warrior advocate for your child, but the journey is worth it!
  31. Jennifer: Your life is about to change for the best
  32. Shannon: You will be OK. You’re going to be on an emotional roller coaster – but the ride ends with a beautiful baby in your arms. I cannot believe how much I cried before my baby was born – and how she has amazed me every day since.
  33. Maureen: Don’t be afraid. There will be challenges- but the joys will far outweigh them!!
  34. Becky: ‎”you won’t believe how much love your child is going to bring into your life and into this world. Welcome to an elite club. “
  35. Brittany: Get ready for the most amazing blessing and most amazing time of your life! You are going to have so many more opportunities in your life now and always always happy!! I know i wouldnt trade anything for my Maddie and i would do EVERYTHING, surgeries and all, all over again if I had to! :)
  36. Debi: U about to receive Unconditional Love, what a blessing!!! My Rylee is 10 and has brought so much joy and love to my family and I and also my friends!!! It’s a wonderful world!!!
  37. Kenneth: Take a deep breath and exhale. It will all be good!
  38. Julie: ‎…everythings for a reason..It may not be the path YOU would have chosen but it doesn’t make it a bad path either..just a different journey.
  39. Jani” The lord picked you for this amazing and special gift, because you are a special person. ♥
  40. Carol: what a blessing!! This child will give you more love than you could ever imagine !!! Love, Love, Love
  41. Paula: This scare will pass and it will turn a lot of joy.
  42. Candy: Congrats on the bundle of JOY!
  43. Jennifer: ready, set, GO! Life is going to get interesting, never boring, tons of fun and filled with blessings!!
  44. Stormie: in for the most amazing adventure ever!!!! Congratulations!!!
  45. Sara: Science has come so far and he/she will be quite a challenge but a great blessing. Anything is possible.
  46. Bonnie: u r blessed!!!! and received a priceless gift:)
  47. Bea: Don’t be afraid to ask for help and don’t be afraid.
  48. Mary: No one comes with a guarantee stamped on our backside. This child will have all of the challenges and unknowns as every child. And NEVER let anyone tell you your child will “never…”! (At 30, our Mollie has proved every one of those nay-sayers WRONG!! And we couldn’t be prouder!) There are many who have traveled this path before you and we will be here to hold your hand and lift you up as you join us. We understand.
  49. Jodi: They thought my little rylee was going to have Down syndrome cuz the tri screening came back positive..I was prepared but she didn’t have Down syndrome when she was born, now she is 3 and half and found out this summer she has autism..she is def my little blessing…any child with or without a disability is a true blessing! ;) and god has picked u as their parents for a reason!
  50. Kare: Wow lots of great comments and ideas here although i will add I did not personally feel all that “blessed” initially and really didn’t like it when others said it to me. I guess I would tell them that I’ve learned so much from the greatest teacher God has ever given me and yes that is a blessing…possibly I would just introduce them to Mika and let her do the talking :)
  51. Naomi: Congratulations…you are about to learn about and feel unconditional love!!!
  52. Angel: have patience. just wait and see.
  53. Mandy: God has blessed you with a Child… That is the most important responsibility that he could bestow on you! He knows you and believed that what ever blessings he sent your way you would be the perfect parent to his gift. All this diagnosis tells you is what a miracle you are carrying inside you and the second you hold that little miracle in your arms any fears will just vanish and the love of your child will give you all you ever need.
  54. Jani: The lord picked you for this amazing and special gift, because you are a special person. ♥
  55. Rhonda: it may bea differnt journey, but your life will be filled with unconditional love!
  56. Leanna: CONGRATULATIONS! Gather your support system and enjoy your new baby!
  57. Julie: Open your eyes and see the baby that needs and loves you!
  58. Amanda: You don’t know it yet, but you will love this little guy/girl more than you can possibly imagine and he/she will be one of the most amazing people you’ve ever met and you will smile more than you thought possible. But it’s ok to mourn the ideas you had in mind but mourning doesn’t last forever and when you see him/her smile, you’ll see the light of the world on that face!
  59. Marlene: Celebrate!
  60. Patricia: I know you are scare and mad am here to help you. I was in your shoes not so long ago. This is my baby Angeleque!
  61. Joleigh: the same thing I say to everyone who is pregnant with any baby. Congratulations! This child will bring you greater joy than you could ever dream possible.
  62. Heather: You get to decide how you want this to go. You can either accept it as a blessing and enjoy the life that is waiting for you or you can mourn what is NOT a death forever. Your choice.
  63. Sara: Congratulations, you will have a child that will change your outlook on life! feel blessed not burdened :D
  64. Marnie: Congratulations on your upcoming birth. (All babies are a joy and should be celebrated no matter what!). I chose NOT to do any prenatal testing for genetic stuff, you get what you get! You love them all equally
  65. Leslie: Remember that God has picked just you for this special gift to love and take care of.
  66. Maren: I know you’re devastated and mourning the loss of what you expected, but your love and joy in this child will amaze you. You may be disappointed now, but you will soon feel very lucky. This child is a blessing to your family and everyone else in your lives. I am humbled that God gave me such a unique gift.
  67. Designer Genes: Congratulations!!!!
  68. Melanie: You may not realize it yet, but you are so blessed!!! Your life is going to change and while change is scary…this change will open your eyes to a world more beautiful than you can ever imagine!!!
  69. Danni: Amazing, beautiful, loving, funny, and perfect no matter what they have or how they look!
  70. Erin: I know this isn’t the road you would have taken, but remember that when we follow the unfamiliar road is where adventure and the greatest moments of our life happen. I’m not saying this will be easy, but it will be rewarding in so many ways. And, I still get to be first in line for babysitting.
  71. Cathy: congratulations and embrace it with eyes wide open, you will have an amazing child!!!
  72. Jennifer: That your baby will be a baby. I know that sounds silly, but, they will do all the same things that any other baby will do. They’ll eat, sleep and poop for the first few months, they will smile and laugh, and rollover and crawl and walk. Just in their own time!! :) Enjoy it, it goes by way too fast.
  73. Stacy: try to focus your energy on what you can do – educate yourself/selves, gather information, supportive people and services… and try to steer clear of worry. It is wasteful and helps no one. Regardless of any diagnosis you are still HAVING A BABY! Yay!!
  74. Melanie: Congratulations!!! Get ready for the GREATEST Blessing in your life!!!!!
  75. Rosalinda: Its ok to feel a loss of what you thought your baby would be, but the baby that he/she is, is absolutely amazing. Your baby is the best gift you could be given and you’ll be amazed at how your baby will change your life for the better and open your eyes to so much more. Don’t worry you’ll be a great parent and will be able to do this. Take one day at a time and know that other families with Downs babies are here to help and support you on the good days as well as the bad. Smile, breath and relax, it will all be ok:)
  76. Teresa: Congratulations, you are raising a Saint.
  77. Marissa: Congratulations :) Deep Breaths everything will be ok take time to gather yourself and don’t feel alone. We are all here with you. And you might not see it right now BUT there is a light at the end of the tunnel it does get easier and you learn to manage ALL the appointments :) HUGS from one down syndrome family to another :)…that’s what I would say in a nutshell
  78. Bobbie: You have been blessed!
  79. ElAnn: You are blessed beyond imagine. I know it can be scary thinking about it, but once that precious angel is in your life you will wonder why you were ever scared or anxious at all. This bundle of joy will change your life for the better more than you will ever know…you are in for the best and most rewarding ride of your life!
  80. Designer Genes: ‎…and would probably throw in, your life is changed from what you expected, true. You will now meet people you would never have met, learn things you wouldn’t have learned, and appreciate things that could have gone unnoticed. You will have some tough times for sure, all parents do. You, however, will get some extras joys in life exclusive to people in your situation. For help along the way, check out noahsdad.com!!! ;)
  81. Kimberly: Raising any baby is hard, but, I don’t have any doubt you can do this. We aren’t given anything we can’t handle and the resources and opportunities for children with different abilities are endless! Enjoy the gift you were given!
  82. Suzie: Please don’t abort your child. If you aren’t willing to accept your precious blessing there is someone that will.
  83. Katie: Congratulations! If only all parents could be so lucky! :)
  84. Destiny: You are in for a big TREAT!! ♥
  85. Jennifer: ‎…just wait and see. People’s ideas of what the diagnosis means and how they will feel once they hold their baby are often worlds apart.
  86. Tina: Welcome to Holland!!! Not the trip you might have wanted….but it will be the best trip you will EVER go on!!!
  87. Denise: Every time that you look into his/her eyes and you see his/her HUGE smile everything in the world goes away and your heart melts into a sea of love and when you hug your child you will be overwhelmed with love, joy, peace, comfort and pride that you have that angel! That extra chromosome is a love chromosome
  88. Cheryl: Congratulations! Loving your baby will be instant. He will fit in with your family just like any other family member. He will learn and grow and you will be amazed. He IS perfect and created just like he was supposed to be. Love your child where he is at. When he says “I can do it myself” let him, even if it makes you late. He can do everything a typical kid can do when he is ready… You got this. Don’t worry :)
  89. Tenielle: ‎”Would you like to talk things over?” and “I can give you some resources to help you adjust to such an unexpected result, do you have any questions?” I’m a student doula (birth attendant) so I may well have to deal with this situation with a client someday.
  90. Joe: Congrats!
  91. Sarah: I know the unknown can be scary, but your heart will be so full of love for this child. You may not realize it until they are actually born, but they are a precious baby like any other! Enjoy!
  92. Carmelita: Congratulations! :)
  93. Callie: God has an incredible story for you and your child’s life – consider yourself blessed that he has entrusted you with such a gift and look to Him daily for wisdom. He loves you and your child more than you know and this is no surprise to Him, He knows what He is doing. You will find that there are so many incredible things to be thankful for in this journey. Get ready to receive more joy and smiles than you thought possible!
  94. Charlene: Congratulations! You have been blessed with the most amazing gift! You are about to experience unconditional love in the true sense of the word!
  95. Terri: A diagnosis of Down Syndrome does not define your child. You will have ups and downs with your precious child. God chooses certain people to be the parents of a child with special needs. You will now realize how BIG your heart is. And how much love your child will heap upon you. :)
  96. Kayla: Congrats on the blessing, god woudnt have givin u a blessing you couldnt handle. My mom has 6 kids one with Down syndrome and she said and i qoute ” just when you think you know everything you need to know in life, god shows you just how mush more there is to know.
  97. Shelley: This is for the family members and friends DO NOT say you are sorry to hear the diagnosis, they are special angels from Heaven and only special parents get to have these special angels, family members and friends should be REJOICING and saying oh my how BLESS you are that GOD chose you to be parents to these special ANGELS!
  98. Jeff: Congratulations you are about to have the most wonderful child you could ever ask for.
  99. Ann: Thinking back when i found out.. after little dude was born the last thing I would want to hear is ‘congratulations’ I think I would tell a person that being upset is ok.. that most if not all of us parents go through it. we morn the ‘idea’ of a perfect baby..and once we get past that we learn what Down syndrome is all about. Yes it is different, yes it is challenging, yes it is rewarding.. yes my little dude is the sun that shines in our house. But all of that comes in time.. it comes with educating myself.. with leaving my expectations behind without leading by my own selfish perceptions..giving up a bit of control and sacrificing a whole lot at times. But that is what being a parent is after all. I would seek to arm that person with information and positive examples of what Down syndrome is.
  100. Jenelle: he (she)’s perfect!
  101. Stacy: God shares his blessings with us in many different ways!
  102. Wesley: what a wonderful experience you about to begin.
  103. Diane: Congratulations! Your baby is 101% awesome!
  104. Cindy: In God’s eyes, all children are created perfectly for the job He has put them here to do.
  105. Lorie: My sister in law has a daughter with cp.She is beautiful and a source of joy for us all/I don’t know what I would do with out her she is the special stuff in life and a true joy.We were so scared when we all found out but she is just part of the family that we love and adore every dayMy mack.
  106. Cande: ‎”What a Blessing” ♥
  107. Andrea: A meeting was held quite far from Earth!
    It’s time again for another birth.
    Said the Angels to the LORD above,
    This Special Child will need much love.His progess may be very slow,
    Accomplishments he may not show.
    And he’ll require extra care
    From the folks he meets down there.He may not run or laugh or play,
    His thought may seem quite far away,
    In many ways he won’t adapt,
    And he’ll be know as handicapped.So let’s be careful where he’s sent,
    We want his life to be content.
    Please LORD, find the parents who
    Will do a special job for You.They will not realize right away
    The leading role they’re asked to play,
    But with this child sent from above
    Comes stronger faith and richer love.And soon they’ll know the privilege given
    In caring for their gift from Heaven.
    Their precious charge, so meek and mild,
    Is HEAVEN’S VERY SPECIAL CHILD.
  108. Vicki: Congradulations!!! This is going to be AMAZING!!
  109. John: your whole family will benefit greatly from what this person teaches them over the course of their life. so, i’d like to say congratulations, good luck.. and welcome to the tribe!
  110. Tracy: Rejoice in the fact that you were able to have a child, not everyone can. Remember God picked you for this special life and it will amaze you every step of the way.
  111. Beverly: Congratulations! You’re about to receive blessings beyond you imagination!
  112. Edie: Embrace it. Love your child with all you have. This is not the worse thing that could happen…..trust me.
  113. Susan: They’ll be a lot of medical issue’s to deal with but so worth every minute being with your special little one! Kayla is amazing at all the things she can do and a whiz on the computer!
  114. Mary: Trust in yourself as a parent and believe in your child.
  115. Erika: Labels do not define your child! Love will lead the way!!!
  116. Amy: Your child is a precious gift from God. You are going to be blessed way beyond what you can measure. We know this to be true because we went all the way to Ukraine to adopt our two angels who have Down Syndrome. How wonderful it must be to carry an angel in your womb!
  117. Carole: Congrats and enjoy, you have a special little gift!
  118. Lisa: Congratulations. This child will be a blessing like all your current and/or future children ! Labels are for soup cans ;)
  119. Stacy: Congratulations! You are about to experience more Love than you ever thought possible!
  120. Justin: go ahead and mourn that idea you had of your baby, its necessary. Don’t feel guilty. Then look at your baby as a baby and not a down syndrome baby. The sooner you can look at them as who they are and not a catagory the more you will get to know them. I can’t tell you how many days pass and Ella’s diagnoses never crosses my mind.. Even with therapist and doc appts I still don’t think of her DS. Usually someone has to say it then I’m like of yea she does have DS. Just remember your baby is a person first. And Pray a lot!
  121. Deborah: Welcome to Holland. It’s a fantastic trip.
  122. Stacey: Using the words someone gave my son when they learned of their daughter’s diagnosis: “You won’t be sad for long”.
  123. Sandy: You might not know it yet but you are about to be blessed with this very special little angel! You will not know it yet but you will love this child more then words can express!!
  124. Suzanne: Go to NoahsDad.com.
  125. Natalie: Prepare to be loved!
  126. Sylvia: Stay away from the people that want to talk about the negatives ,surround yourself with sites like this and people who know the true joy of having one of these children in their lives. Do not set limits but rejoice in every accomplishment no matter how small. Last but not least prepare to experience the most awesome form of love and joy you could ever imagine.
  127. Anna: Congrats! Get ready for one of the best times in your life!
  128. Patricia: Welcome to Holland for sure! It’s an absolute beautiful place to be!!
  129. Alana: Mourn your loss and don’t feel guilty. But soon, you will be able to see your child and I promise you will see so much more than down syndrome.
  130. Jessica: this baby is going to be such a blessing to you and your family
  131. Susan: Allow yourself to grieve for the child that might have been, then allow yourself to rejoice for the child that will be. My David has been the greatest blessing of my life. I LOVE being his mom!
  132. Wendi: Their normal ppl just like us accept and love them
  133. John: It can be a challenge but who said life should be easy.. This is your chance to make a real differance and no matter what you will forever love your child Tri-21 or not. Do your best to be a great parent and you will have a great child and happy life.
  134. Claire: Congratulations, says it all really :)
  135. Tara: That we Indeed are the lucky ones!!!
  136. Sandra: Congrats on ur new bundle of JOY. God sent u one of his special angels that only a few are chosen for this huge responsibility. My son is 13 now and he’s my world.
  137. Miranda: Welcome to the family!!! You will never have a dark day again b/c your child will light up even the darkest room with their smile. It will be absolutely amazing!!!
  138. Tregg: Its good to see, judging by the responses here, that I was not the only one caring around a lot of guilt for my sense of loss immediately after my daughter’s diagnosis. That was over 2 years ago and I still feel ashamed of how I felt that day.
  139. Lora: I know you don’t believe this, but trust me, one day you WILL find yourself saying “it’s only Down syndrome”.
  140. Patricia: It’s okay. They are unique and belong to a loving community of caring, carrismatic people.
  141. Bonnie: To God be the glory!
  142. Beatrice: Congratulations on your new bundle of joy because that is what every child brings is joy
  143. Scott: Welcome to our community! You are about to embark on a journey that will introduce you to the BEST group of people, literally, in the WORLD. We are in the age of the internet, but stay away from the “dot coms” and learn from the “dot orgs”. The “orgs” are more helpful/educational and come see us online at www.noahsdad.com. Meet my son Kellan…
  144. Ellyn: My OBGYN said the best thing to us and he was SO right! He said we would find this to be a blessing for our family. Our son has blessed our lives in so many ways and we wouldn’t change him!
  145. Mark: Welcome to happiness.
  146. Kara: Shall Congratulations on winning the lottery!! :))
  147. Denise: I wish I had had someone who had some good advice for us when I got the prenatal diagnosis that our baby boy Avery has Down syndrome. It was the scariest time of my life…worrying about the unknown! We got the diagnosis just over halfway throug my pregnancy & I was absolutely terrified! Avery is now 15 1/2 months old, absolutely beautiful in every way, super smart & the joy of our lives…& I couldn’t imagine another second of my life without him! I still get so upset when people find out he has Down syndrome & say “oh sorry” or “that’s too” bad! Yes…I’m sorry the aren’t lucky enough to have been blessed with a child like him! He is totally amazing in every way & my husband & I consider ourselves very fortunate to have been chosen to be his parents.
  148. Jenny: Congrats and Welcome to Holland!!
  149. Renee: Lucky You! =)
  150. Kim: GOD has blessed you with a very special gift. Congrats…
  151. Edie: The neonatolgist told us “he will be the light of your lives.”. And even after his death, he still is.
  152. Melissa: this baby will amaze you and your not alone
  153. Billie: yes .. it will be hard, but its nothing that u cant handle.. not everyone gets a baby with downs.. so ur special and ur baby is also!! be happy!!! it will change ur life for the better!!! =)
  154. Ruth: Take it one day at a time. He/she will be a baby and need live and everything a typical baby would. Expect cycles of being happy and mourning the loss of your dreams for a typical child. It may come in waves. Know that it WILL get better and you’ll find sometimes you may wish all your kids had down syndrome because they can be so sweet/easy to be around. Try not to idealize or feel guilty bc of those who do. Surround yourself with friends who’ve been there to encourage you.
  155. Cindy: Congratulations!
  156. Laura: Don’t worry – everything will be A-OK!
  157. Jeanine: CONGRATULATIONS!!!:))
  158. Delayna:  Congratulations! I’m here for support and first hand guidance if you need it. :)
  159. Alex Mandara: He or she is down but not out!
  160. Regenia: Take things one day at a time. Don’t focus so hard on the future.
  161. Amy: Congrats on your Specially Wrapped gift. Mine has been a blessing and has brought so much joy:)
  162. Lisa: The scary parts aren’t as scary as you think they will be. The joyous parts are even better than you think they will be. Everything will be better once you can hold your sweet, loving, beautiful baby. Have faith that god wants this baby to be with you for a very good reason.
  163. Erin: Congrats! You are one of the lucky ones!
  164. Amy: Congrats! take a deep breath and everything will be awesome it will give you a whole new prospective on life
  165. Kari: I haven’t met my baby yet, but the best piece of advice I have came from my genetic counselor. This is especially important for a first-time parent like myself. Your baby is more like other babies than not. Don’t overwhelm yourself with all the information out there about Down Syndrome right from the start. Read your baby books first! Celebrate your pregnancy. And by realizing that this is not the worst thing that could happen and that you will love your baby no matter what, stay positive – and others will follow your lead.
  166. Bonnie: Oh how exciting…..you are in for the most blessed life ever!!! Yes, there will be good and bad days ahead but it is true with any child….you will learn so much from this child and your lives will be so much richer!! Place this precious one that God has given you charge of in HIS hands….Jeremiah 29:11 For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
  167. Jennifer: Let’s get learning so we are ready for your amazing baby!
  168. Cortney: What an honor, you get to be the parents of one of the most pure human beings you will ever know!
  169. Jenna: Congratulations u were chosen for a special reason and get ready cause it’s a wild ride:)
  170. Courtney: Welcome to the way life should be! This child is going to overload your heart with love & pride!
  171. Christine: The same thing that was said to me when our son was born (unexpectedly with DS): “Do you realize how blessed you are?? God has chosen YOU to take care of one of His most special angels here on Earth. The joy that lies ahead for you is unimaginable.” Didn’t believe it at that moment but I stand here – 6 years later – and say “Amen! Thank you, Lord for the blessing of my son!” He is like having a glimpse of Heaven here on earth.
  172. Christopher: You will never how lucky you are! Only special people are chosen to have special children!!!
  173. Jennifer: Congrats! You just hit the lottery of love!
  174. Heather: Welcome to the family! Although you may be feeling scared, angry, hurt, sad, and confused, YOU WILL BE OK. Not only will you be ok, you will soon find out that this is exciting, joyful, and one of the most amazing experiences you will ever have. So don’t waste to much time being upset, I did and I regret it :)
  175. Lorrie: You are so blessed!
  176. Amy: I think the worst thing that I was told and have read many times is “it was just a fluke.” cause who wants to hear that their baby is a fluke?? It made me feel so guilty!! I don’t believe in accidents and I know that no one, no matter their diagnosis is a fluke! Every person is beautifully and wonderfully made. I wouldn’t change anything about my little guy or my other kids for that matter. And yes, it really is just down syndrome. Every single one of us has our challenges and special needs, no one is exempt. Our children our awesome and made perfectly!
  177. Shelly: ‎”CALL ME!”
  178. Amy: Ditto on Jeremiah 29:11!
  179. Carol: Have you seen Noah? He’s so friggen’ cute!
  180. Chasity: I know you are scared and a little sad but believe me when I say EVERYTHING will be OK!!! You will love your baby so much! When that baby smiles up at you, you will know “I LOVE MY BABY”.
  181. Melissa: Psalm 138:14. ” I will praise You for I am fearfully and wonderfully made!!!!”  God doesn’t make mistakes. This is a blessing not a punishment. Wait until you see how much richer your life is about to become!
  182. Renee: Love that baby as you would any other, don’t focus on the diagnosis, meet other parents with children with down syndrome and get 1st hand knowledge and please know that people with down syndrome are more like people with out down syndrome than they are different. I would also say congrats & I’m here if you need guidance and support.
  183. Julie: This scenario happened to me last yr….I said “Congratulations! Even though it may not feel this way now, your life is about to change for the better.” She said I was the only one who wished her a congratulations and she was so deeply touched by my gesture. A special moment I will never forget :-)
  184. Ange: Remember first and foremost that you are having a beautiful unique baby, feelings of grief,despair,anger,loss are natural…and medical staff often paint a negative picture but be brave and make an informed decision regarding your pregnancy, talk to another parent and/or find a local support group. And from a mum who has walked the path of having a prenatal diagnosis…my son changed my life in the most profound way before he was even born and now at almost 2 years old he amazes us every day, if only every family had a child with Down syndrome…we are fortunate.
  185. Melissa: Psalm 139:14 not 138. Ahhh typing from an iPhone!
  186. Luz: God knows what He is doing, trust Him with all your heart.  When I knew Ariel had ds before he was born I felt lonely and sad but I loved the Lord and decided to accept His will. God has never failed us, He promised to provide for Ariel’s needs and it has been that way since. God uses Ariel to bless me and all who surround him. Just trust Him, your son/daughter will fill your life with love and miracles.
  187. Ana: First, congratulations! You’re goingt to have a baby and you’ ve to love him/her the same you would do without the extra chromosome. And second, expect the unexpected… Nobody knows what are going to do your child!
  188. Audrey: Hang on and welcome to the ride of your life. Fun, scary, frustrating, but so worth it. I have been on this ride for almost twenty years and not regretted a single moment.
  189. Bernadette: Congratulations you are going to have a gorgeous Baby! Yes! Really! a Baby, an eating, crying, smiling, sleeping, growing Baby! The rest of the stuff could come with any baby but you know, so take the opportunity to get to know your baby before he comes. A prenatal ultrasound of his heart and bowels and Dopla will tell you loads. Then plan his perfect birth just as you would your other babies, and enjoy every wonderful blessed amazing moment. When he comes you will want to bond and keep him maybe even more precious b’cos he is and you may need extra time as a family. Take it is your right and the most precious time for you all. Don’t let the hospital steal it. I thank God I knew early, it nearly killed my husband. If we hadn’t had that bonding time he would not have accepted our son. I am blessed with 4 children x
  190. Stephanie: Don’t freak out!!!! You’ve been given a gift that will bring you joy like you have never known before! Above all protect him/her until they are born, then hold your child like the treasure they are. And never let them go!
  191. Joan: God sents us these angels for a reason.When you see the happiness that shines from their eyes you know why.We thank God for giving us our angel.
  192. Kevin: Congrats! You are about to become parents of amazing child. If you have other children, I recommend this buying this book “We’ll Paint the Octopus Red” by Stephanie Stuve-Bodeen.
  193. Lori: Congratulations. You have been chosen to be the parent of a very special an unique child. You will learn many things about life from this little miracle.
  194. Laura: God is in control!
  195. Lori: I would first tell them Congratulations! And how wonderful it is to have a Down Syndrome child! Then I would advise them on the books I read, and tell them to reach out to their local Down syndrome organization to talk with other parents.
  196. Liz: CONGRATS!!! These pip-squeaks ROCK!! It’s like winning the lotto for special kiddos :
  197. Diana: chosen
  198. Regina: Congratulations! Don’t be sad. Enjoy your baby!
  199. Antonia: Enjoy your little blessing :o) (why say anything different than if their child didn’t have down syndrome)
  200. Jennifer: I would congratulate them and encourage them to let themselves feel whatever it is they are feeling….they’re entitled to take some time to wrap their heads around all of it…learn what it means. But then I would advise them to not let their fears of the unknown take away from their joy in the present. I’d tell them my biggest regret was wasting a single minute being sad in the beginning instead of just soaking up and enjoying every minute with my baby.
  201. Anisha: WELCOME TO HOLLAND……. I would give them the poem.. tell them the emotions they feel are ok.. it does not mean that they are bad people and they don’t love their baby…. I would also tell them to take the time they needed to grieve as we all did some may not admit to it but you know you all did have a moment even if it was a single moment that you felt like your heart sank to your stomach…. then I would say the best is yet to come…. and do not tell your child they have DS and they just might surprise you how they are just like a “typical” child they just have to work a lil harder and you have to push them a lil harder but it is well worth it when they first say momma… when they take their first step…. and welcome to the group.. there is so much love and support in the world of Down syndrome you will never be alone you will never have no one to talk to and you will never have questions or concerns go un answered as long as you ask…..and welcome to the rest of your life being filled so much love and joy :-)
  202. Linda: hope
  203. Kim: you said would I would it is great advise I do tell parents they will have a normal a different normal than you thought but a normal just the same but to me the grieving part is very important so they know it’s ok to feel that way than you will feel more joy than you think possible!! Lexi is the joy of our family I can not imagine life without her in it!!!
  204. De-Anne: Dont be afraid, your baby is a product of you still, with a bit more sugar thrown in :D
  205. Anisha: Just don’t forget that you have to give the new parents some time and space give them the resources they need and let them know you are there….. but don’t be to pushy in the beginning it really is a lot to take in.. give them a few days before you reach out to them again and just let them know that you have material that will help answer questions and pre peace them for the journey they are about to embark on.
  206. Lisa: ‎”I know this AWESOME website you can check out…” :)
  207. Mattie: You are more blessed than you know!! What an honor it is that God chose you to take care of this amazing life. He/She will not only change your life for the better, but everyone else who will come in contact with him/her. God never makes mistakes. “I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full.” ~ Psalm 139:14
  208. Katie: Congratulations!
  209. Stephanie: congratulations–you are about to know love and blessings beyond measure!
  210. Cathy: It’s All Good!
  211. Cheri: One day you are going to realize that you are one of the lucky ones. My daughter is nine now and I am so thankful that God chose us to raise her! She affects EVERYONE she meets! We are so lucky to have her in our family!! Don’t worry!
  212. Jeannie: WOW!!! Are you ready for all the Love!!!!
  213. Kimberly: I wouldn’t need to say anything, I would just bring my Noah and they would see how WONDERFUL their life was about to become!! :)
  214. Ellie: Congratulations! You are lucky to have this baby. Someone actually said this to me, instead of saying how lucky this baby will be to have you. She was absolutely right, I was!
  215. Leslie: Tests don’t determine level of functioning. Learn everything about hypothyroidism, subclinical hypothyroidism, and T3 hormone you can. Don’t accept the words “That is just Down’s.” You are probably grieving a stereotype and you will find that your baby is far from what you grieved. Placing stereotypical expectations sells God and your child short. You will be amazed at what they both can accomplish.
  216. Wendy: Before a genetic counselor gives you their grim prognosis, arrange to meet a child with Trisomy 21 and you will see how blessed you are to be one of the chosen ones.
  217. Libby: congratulations! I’m so excited for you!!! It really is an amazing journey and i love being on it!!! xx
  218. Mishayla: Congratulations!!! That was something that was not said to Tony and I!!
  219. Mike: Congratulations, you have won the jackpot.
  220. Meredith: I would tell them that their baby is a wonderful little blessing and that they are on the most wonderful and amazing journey. Just make sure to keep God in the driver’s seat!
  221. Donna: You will have highs & lows; will grieve & rejoice; will laugh & cry! I am only the great-grandmother of a child with down syndrome but I cannot imagine our life without her! It won’t always be easy; but will be a blessing that you could not have dreamt of before your baby arrived!!
  222. Wanda: believe that God has a purpose for your child.Love your child no matter …Isn’t Noah adorable
  223. Samantha: Congratulations you have a beautiful baby, you are about to meet the one person in your life that will change your heart to a thousand times bigger, show you Gods presence in every tiny wonder and bless you with so much joy & love you feel as though You’l burst. Please try not to feel too sorry for those that don’t ‘see’ you can introduce them to your little blessing & I guarantee he/she will change their lives forever too! because your babies love & joy of life, well it’s contagious & once you get your eye’s opened like that, you get to keep it with you all of your life. I would then explain the medical side & express that if it takes that extra special gene I think it should be renamed ‘Up Syndrome’ :)
  224. Sarah: Congrats, every you feel is normal, just because your baby isn’t the ‘average’ baby you were expecting but the baby will eventually do everything the same as any other ‘average’ baby can it will just take that little bit longer to get there. I would offer as much support as I could, I would answer any questions they had honestly, and show them that having down syndrome in your life is not a death sentance. Just because you had one road mapped out for your child dosnt mean that you can’t add a few speed traps, speed bumps and road works along the way, but the end destination will eventually be the same
  225. Katie: WELCOME TO HOLLAND!!!
  226. Gabrielle: CONGRATULATIONS on your little angel!! ♥
  227. Darla: AWSOME!! God has just blessed another family with another ANGEL, wow you are so fortunate to have been chosen to experience so many joyful moments too such a wonderful perfection of Love , laughter, and yes lots of new beginnings, so happy for you.. Congratualations!!!
  228. Becky: ‎”Have fun with your little one!” This was one of the most refreshing things we heard after our Gabby was born. :)
  229. Allison: Try not to worry, you are embarking on the most incredible journey, enjoy every minute!
  230. Kylieand: We had a prenatal diagnosis and we were very happy and looking forward to meeting our precious little man. All we wanted was for people to share our joy and excitement (which most did) :)
  231. Stacey: So many doors have been opened because of other children/adults with Down’s that I can’t wait to see how many doors your angel opens! Congratulations on your bundle of love and joy a true gift from above!
  232. Kelly: WooHoo! (And I’m serious…I love them so much!!!
  233. Kristina: You can do this!! Accept that the journey with this baby will be different and wonderful!!
  234. Kelley:  I would say congratulations and welcome to the elite club. You may feel alone, but you are not. Do not feel guilty for being upset, worried, etc. because we’ve all been there (whether pretnatal diagnosis or at birth). Enjoy every moment of your pregnancy because you will miss it :) You will get more support than you expect and will be surprised by many wonderful people along your journey. God will put many new people and opportunities in front of you. There will be good days and not so good days. Reach out for help when you need it. Most of all, ENJOY YOUR BABY!!!!!!!!!!!!!!!!
  235. Lisa: Get ready for a great adventure! You indeed are blessed from the Lord. :)
  236. Anne-Marie: Make sure you get a whole load of lip salve, coz you’re lips are gonna be SOOO sore from all the kisses you’ll get!!! :)
  237. Shauna: I would say, I know it seems so scary and overwhelming, but this little miracle will change you in ways you could have never imagined. It is okay to feel the way you are feeling, and trust me when I say everything will be okay! :)
  238. Angela: Congratulations!
  239. Tammy: I would advise you to first grieve the child you had imagined and then thank God for the blessing of this special child who will bring you more joy than you ever thought possible.
  240. Raising Riley: Children with down syndrome can do anything a typical child can do, it just may take longer and it may happen differently, don’t research until you’ve had a chance to adjust, visit Noah’s Dad blog and wonderful FB page and…ENJOY YOUR BABY!
  241. Kristin: There is nothing to “mourn”. These babies are just like every other baby..they just have a little something extra!
  242. Jaci: Its the best “worst” thing ever!! Its ok to be sad and feel a loss…we all did…..but you’ll get past that when u see how fearfully and wonderfully made ur lil miracle is!
  243. Amber: don’t be scared. this baby will be the best thing that’s ever happened to you, i promise, because he/she is an angel in disguise. you’ve been given the gift of being able to see the world in a brand new and beautiful way.
  244. Cathy: Congratulations!! You’re having a baby!!
  245. Corinne: I would say congratulations on your beautiful baby. And please check out Noahsdads page on FB!
  246. Brenda: How exciting! You’re having a baby!
  247. Catrina: Congratulations on your baby!!!
  248. Vikky: don’t be scared.
  249. Shona: Meet a baby and as many parents as you can before you go on the Internet or make a decision!
  250. Alyssa: My older sister has Down syndrome and when a friend of mine’s baby was born and the doctors weren’t sure, but thought her baby possibly had Down syndrome, I asked my mom what to say. She said, “Rejoice with her, for a baby has been born! Cry with her, because life will be different than she expected and there is (and needs to be) mourning of the expectations.” I thought those were very wise words.
  251. Marta: see your child, always. not the down syndrome.
  252. Kirsten: Everything’s going to be alright! Just prepare for a baby!
  253. Grace: You are about to bring an amazing child into the world. Can I babysit?
  254. Bruce: Blessing
  255. Wendy: The sun will rise again and this time it will be so much brighter! You are blessed!
  256. Charlene: Don’t panic, it will be okay! Lots of challenges, but also many blessings.
  257. Maureen: Yours is not a story with a sad ending; it’s the beginning of a different kind of story – a wonderful one with sooooo many blessings!!!
  258. Susan: you will find that your child is absolutely perfect
  259. Elaine: God has chosen you!!!!!
  260. Byrd: my brother has downs I think ups would be better description you’ll never know anyone with more love and sweetness!
  261. Jeanie: What a blessing! The Lord has matched you with this child to love one another!!
  262. Casandra: congrats!! you are a lucky mummy :) dont be scared and enjoy!!!
  263. Lydia: Dream big! This is a new generation of kids with Down syndrome, and they are knocking the socks off of everyone’s expectations.
  264. Susan: you have been blessed, and will never feel a stronger love than the love that will be felt between your child and you
  265. Melissa: ‎”Welcome to Holland”
  266. Denise: It’s ok to be scared and it is ok to be sad…but when you lay your eyes on your beautiful baby you will soon forget what you were so scared and sad about. You will truly feel nothing but pure joy.
  267. Carol: It’s a wonderful life. get READY!!!
  268. Meri: love with all your heart and you will be rewarded with the unconditional love only a child could give! Congratulations!
  269. Rebecca: congratulations and welcome to the family.. you are now going to be part of a very select group of parents. Read the books, talk to the professionals who will explain the science of down syndrome and then listen to your heart. God gave you this precious baby.
  270. Andrea: God only gives us what we can handle. Enjoy your baby! I don’t have a child with down syndrome but would welcome one in my life at anytime!
  271. Erica: Congratulations …. Your baby is beautiful and a blessing but wait because your angel you, your family and friends and whomever that lil angel comes in contact with will become better people I watch it over and over and over :-)
  272. Stella: Congratulations! If you need someone to talk to or need help, I’m available.
  273. Helen: You will now know the most amazing gift of love sent down from God. Hold on it will be a great ride.
  274. Jane: What awesome gifts are babies are. Others will be jealous :-) they are not down syndrome. They are people who have down syndrome. It’s not a disease !!
  275. Lori: To go to noahsdad.com!!!!
  276. Monica: Take things one moment at a time. With a new born baby, all you need to do is feed them, love them, let them sleep. That’s do-able. Then the next day do the same. I found I took things one day at a time and if things got really tough, o…
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  278. Tuesday at 11:27pm · Like · 2
  279. Courtney Allen Kane This is not the path you planned on, but you will soon realize as you work through all of your emotions, that there is no other place you’d rather be. Your lives have just been enriched in a way that cannot be captured in words. We received…
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  281. Kathy: that child will be the most loving human in your life.
  282. Jeannie: I can only offer my own experience of learning shortly after our son was born. I would not sugar coat anything, be open and honest. I would tell them, it’s normal to grieve the perfect baby you had imagined. The fear and quilt, while it’s s…
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  284. Kristen: ‎”I love babies!!!” My dh and I decided we were NoT interested in this type of info at all with either of our pregnancies! No tests for us! We wanted a family!
  285. Renae:  congrat!!! u are about to bring one of Gods angels life!!!
  286. Sarra:  You will soon see that you are one of the lucky ones! Only a select few get this special privilege. Congratulations!
  287. Pauline: It’s gonna be ok, go ahead and cry, and wonder why this happened, but when you hold your beautiful baby for the very first time you will have so much Love and understanding and say,… I will be their for you always!!
  288. Paulette: Everything will be OK. Now hang on for a wild ride!
  289. Michelle: It will all be OK. ( and I really wish Noah’s dad would compile these and send them to all the OBGYNs who deliver the prenatal diagnosis!) : )
  290. Laura: If everyone could view the world through the eyes of a down syndrome….WOW, what an awesome world it would be!!!
  291. Stacey: Its just a different journey than you had planned, but it is what you make if it, and it can be amazing, them most wonderful journey one can be on….. Difficult, stressful, and full if joy, amazing, wonderful events await. You….. Enjoy the ride!!
  292. Laura: Congratulations!
  293. Helen: Once you can breath again, you may think that you are unable to give your baby what they need to make it in this world. But the moment your new baby arrives and yells hello to the world, you will see the most love, fight and compassion for …
  294. Emily:  Congratulations!! You are blessed. There may be challenges but the joy and love outways any challenges. You will learn to see life in a whole different way; a good way. Hug and kiss that baby and you will get tons of love and happiness in return.
  295. Jen: you will truly be blessed with a living miracle ♥
  296. Joy: get ready to get your socks blessed off!
  297. Cathy: You’re so blessed.
  298. Stephanie: You are blessed by God with the sweetest child….a treasure from Heaven!!!!
  299. Andrea: special angels only are given to special people
  300. Susan: your life is about to change and it will be for the better!  The love that is shared through each family member with your new baby, will enrich each person that that family member crosses throughout their lifes!
  301. Michele: Congratulations! You’re baby is beautiful!
  302. Miranda: I feel good, not just because my daughter is doing great, I feel good because now I know I am not alone, I feel love in every post I see here, since my baby was born I see life from an another perspective,I feel more mature and stronger than before, and God bless my OT to gave me the link of Noah’sDad. Thanks to all of you because I think we are special people living with angels !
  303. Sarah:  its a road not everyone gets a chance too travel and its one with alot of bumps and potholes but none too big you cant get thru…. and the ride is the most amazing as long as you allow yourself and child extra time too enjoy it!!!!!!! :) its been a fun ride so far for our family i hate using the word blessed its way over used…… he is an amazing child….. Timothy has changed everyone is our world for the better :) its great!
  304. Eunice: I would say-“your in for the ride of your life, so get ready, you were chosen to be BLESSED!
  305. Crystal:  I would say, “Congratulations! You certainly are very lucky.”
  306. Toni-ann:  Go buy a lotto ticket !
  307. Adriana Ferretiz: I would definately let them know that their child a special blessing. That God spent extra time to make him/her that much more special:) my son is my world. I was 15 when he was born and he made me the strong mom i strive to be for him. Love Doesn’t Count Chromosomes♥
  308. Michele Maloof Varney: I would say “You should meet our cousin, Seth”. ♥
  309. Maureen Rich Wallace: I would say, “Stop thinking. Wait until you have your child in your arms before considering any fear you have for the future. Because I promise, once your child is asleep in your arms or looking up into your eyes, you will find the strength to take one step at a time and one day at a time. Oh, and go take a nap now while you still have free time!”
  310. Trish Klinefelter Nelson: Get ready to fall in love!!
  311. Amy Fulmer Ezell: I would say that GOD only gives special children to people like ya’ll. I have a daughter that is mild to moderately retarded with some autistic tendencies as they say. Really the truth is they said they really don’t know. All I have to say is 16 years later I am most honored to be Summers mommy! I am thankful my friend Crystal Pitts Dearman had Noahsdad.com on her fb. Now I know I am not alone on this Journey with Summer!
  312. Maddison Jacobs: god gave you this special little angel ti raise for him you are so blessed .
  313. Nana Lala: ‎”You have been blessed beyond measure!”
  314. Leanne Perryman: I would say that as hard as those words are to hear initially, you would never take them back because these babies are very special little people who have a little extra something and I’m not talking about the extra chromosome :) you will love your baby more than you can ever imagine. You are so so very lucky.
  315. Cindy Ailey Quinn: Fasten your seat belt…you are in for the ride of your life. Sometimes the road is rough and rocky, sometimes it’s smooth and scenic; Enjoy the journey, this child will be the blessing of your life. They will teach you much more than you ever teach them! It’s hard work, but it is so worth the effort!
  316. Elizabeth Eddings: I’m a grandmother of a 3 month old DS baby boy. I was divastated, with emotions that is hard to decribe. We all morn in diferent ways. Something would be wrong if we did not. Father and Mother will have their own emotions, feeling like this is a bad dream. Not having control and knowing what to expect. Living Moment by moment will be away of life for awhile.Cry, Cry, Be Upset, You may queston God. But God is always with you. You will make it…Read a little enough to know about SD. My Daughter in law and I felt it was dicouraging and depressing learning the challenges this child may or may not have. You will really not know until baby is born. Find a support group for families with a DS child… God will make a way for you and your family. People told me that my Son and his Wife must be special because God is giving them a child w DS. It has been 8 months now since the news that rocked or world.. My Grandson whom just turn Four a week ago, told his brother Issac whom has DS last night. You are Special Because God Created You Just The Way. I know Isaac already knows what love is…. Time will heal and help you. Soon You, your Husband and Baby will be over on the other side together. Giving and receiving joy and love from each other.
  317. Jade Christopher: you are about to endevour on an extarodinary journey where you will experience true love and see life with clarity and realise how much you have been blessed to have been chosen to parent such an amazing child
  318. Renae Williams: i wld say give ur baby a chance at life!!! you will b plesantly suprised and blessed…the road will be difficult but the good outweighs the bad!!! congrats for being chosen by God!!!
  319. Gina Carrera: Don’t worry, this actually is the best news you’ll ever get and here’s why…. Photo of your sweetie. : )
  320. Margaret McCormick Owen: I would say that the baby will change your life just like any other child. There will be hard times and joyous times again just like any other child. Raising our son has been hard work and our concern and care for him will go on for the rest of his life. I have two other sons that I can say the same about. Jesse has brought a dimension to our lives that we never had before and I cannot remember life without him.
  321. Libby Holmes: Awesome
  322. Lisa Landry Crochet; Right now life seems unfair….you will realize real soon you are the fortunate one who gets to look at life through an amazing window.I feel so honored to have this window to look through.
  323. Joy Schwarting: Not gonna lie times will be tough, but the good def. outweigh the bad! They are a true blessing from God.
  324. Victoria Heether Kolodziejski: I know you are scared but your son/daughter but I can help you find support and resources. It is scary to find out your child will have any kind of disability, but you are not alone. I am here to help you.
  325. Penni Cholette: It’s okay to be scared. It’s okay to be angry. To question ‘why me?’. But please remember, it is always darkest before dawn. It does get better. I promise you. The sun will shine again for you. The world will continue to spin. And you will have a beautiful, amazing baby that will teach others more about themselves than they could ever teach him/her.
  326. Dawn Loy: I would say – I am so jealous – my little one is 16 and it’s been the BEST time ever!
  327. Karen Shutts: You are in for an amazing and joyful ride, with all the love you’ve ever wanted and then some!
  328. Anabela Loureiro: I do not have D.S. in my family, but the beautiful people that I have encountered with Down Syndrome are pure, wiser then we think and they radiate a selfless glow. Hmmm….precious “angels”.♥
  329. Anabela Loureiro: A child is a gift, more precious than any other. For only you will know if you’re their father or mother. The tantrums they throw, the challenges they face can never erase that smile on your face. The pride and the love radiates from within and after the chaos sheer joy and peace will begin. So no matter how upset a parent can get or no matter how stressful our life can be… our duty is to care for our gifts and to love them unconditionally. One of my poems….Our Most Precious Gifts.♥ Hugs to our handsome little guy, Noah. I see that he is deeply loved. It’s a beautiful thing to be here. God bless you all!:)xx
  330. Laura Quinn Gibbons: Congrats!!! It’s a fun and amazing journey!!!
  331. Andrea Jane Matz: Welcome to the most wonderful community ever! You will always have someone there for you, and your child will have so many people cheering them on and celebrating everything they do! Not many parents have that experience with their children. You will work hard and the rewards will be amazing! Congratulations!
  332. McCollonough Ceili: This is not the end, but the beginning of a scared souls journey in this world.
  333. Nicole Fite: What a sweet ride
  334. Farrah Manley Hill: They are so blessed that god chose them to be the parents of such a beautiful life
  335. Sally Nelan Boyd Smile: you’re in for a beautiful ride.

Wow, what a list, huh!?

We need your help to make this list one of the best Down syndrome resources!

I really want to make this list one of the most helpful and encouraging resources available for someone who has just recieved a Down syndrome diagnosis. In order to that I need your help. Will you take a minute to add a comment below with what you would say to someone who just received the news that their child was going to be born with Down syndrome?

Don’t worry if someone above has already said it, say it again! The longer the list, the better.

Please feel free to share this list on your Facebook wall, email it to your friends and family, link to it on your own site, ask your friends to add to it, etc. I really enjoy finding creative ways to bring people together to create resources like this! So thank you, and I look forward to reading your comments below.

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About Rick Smith

Hi, I'm Noah's Dad and I'm passionate about giving the world a window into our life as we raise our son who was born with Down syndrome. I also enjoy connecting with other families, so let's stay connected.

Comments

  1. Wow! I am so thankful to have found all of you! I would have loved to read that list or been connected to NoahsDad upon James birth! You are certainly making a difference in this world:)

  2. Anna Theurer says:

    Congratulations!  It is okay to be scared and angry.  After those feelings go away, you will realize what an amazingly perfect child you have and what an amazing journey you are on. 

  3. maddison jacobs says:

    i would say to them that god picked them  for this very special little one to raise as theirs n love and that everything will be ok just love your baby and get ready for a great life and lots of proud moments

  4. congratulations :) i totally agree with another comment never say sorry. there is nothing to be sorry about.

  5. The bad thing of having a baby with DS is that you get sad and worried for a moment, when having the news.. the GOOD thing is.. after that you´ll never ever be sad or worried no more.. everything is love, love and more love..It should be named: LOVE SYNDROME. That´s exactly what it is.

  6. Congratulations on your baby! Remember you have a baby with Down syndrome, not a Down syndrome baby :) It is OK to be scared, but you will do great! 

  7. Hollyskip24 says:

    This is amazing thank you for sharing all of these responses.  I particuarlly like #30 &#32. I often wonder what I will say to someone that recieves a diagnosis of their child having down syndrome…i might just have to barrow some of these ideas.

    • Thanks for the kind words, and feel free to use any of them! Also please be sure to come back and let us know if you ever get the chance. There are over 14 thousand people on our Facebook page who would be happy to help you out anytime. :)

  8. I had people tell me that I must be quite a special mom to be given a child with Down’s.  If you are a believer, be ready to give God the glory!  He is the one who gives us the strength and wisdom and perseverance to raise our kids, especially our kids with Down’s.  Trust God!  He is worthy!!  Our son with Down’s is 11 now, and I wouldn’t trade him for anything!  I do look forward to heaven, where he won’t have the disabilities that he has now.  Then again, in heaven I won’t have the spiritual disabilities that I have now!  Won’t that be a wonderful day!!!!

  9. Congratulations! You have a beautiful baby! The road ahead will have bumps and bridges, but the smiles and hugs you receive every day will be the blessings of your life. Take it one day at a time with an eye on the future…..exactly what I would say to a parent ANY newborn – regardless of diagnosis. Enjoy every day and realize your child will be the wonderful person God created for you…

  10. Kdalmond10706 says:

    The first thing I would say is breathe, everything is going to be ok. My husband and I didn’t know our son had DS until he was born, I too didn’t have the prenatal testing done. I was scared at first because I knew he would have challenges ahead of him. He has been the most wonderful blessing to our family. He is reaching great milestones every day! He brings such joy to our lives. Our marriage is even better than it was before our sweet blessing!!! Always remember God is in control and he will NOT put more on you than you can handle. Almost forgot, you will meet some of the best people through your journey who are genuine because they want to be there for you. I would definitely do it all the same if given the chance!

  11. Christine Samuels says:

    I totally missed this!  I would add – It’s better than you think!  And  it’s always worth it!  <3

  12. What a wonderful, amazing journey you are about to embark on!  My 21 year old daughter has touched more lives than I knew possible.  She brings out the best in everyone and does everything to the fullest.  Be prepared for a wild, crazy, ride!

  13. this list is so true and amazing. i knew nothing of down syndrome before i had my son and found this lovely group of people. i am truly thankful and feel alot of support from all of you. thank you all and best wishes to all. my son is the light of my life and amazes me everyday on how he interacts with his sisters and others.

  14. I was so full of doubt, anxiety, fear and hopelessness…for weeks.  Then, when my son turned 4 weeks old, he smiled at me.  I mean, REALLY smiled at me.  A huge, eye crinkling smile.  Every bad emotion I had just melted away, and I fell completely, hopelessly, head-over-heels in love with my son.  Your baby is just that.  A baby.  He is unique.  No parent wants a cookie cutter child.  And you have been blessed with an amazing, perfect, unique baby who will hold you in the palm of THEIR hand.  Congratulations.

  15. Riotaco says:

    From our
    baby’s 65 year old geneticist when we got her diagnosis:

    Trisomy
    21 is not a death sentence, or sentencing to a nursing home like in the past. (S)he
    will live as fulfilled a life as YOU decide. (S)he can go to school, make
    friends, go to college, and even get married. (S)he may have to struggle
    differently from other children, or try harder, but rest assured ANYTHING and EVERYTHING
    is possible for him/her. It all depends on YOU. The only thing (S)he can’t do
    is obtain a driver’s license; think of the insurance savings!

    • Actually, I’ve heard of people with Down syndrome who have gotten their drivers license. :)

      • Caleigh M Crow says:

        A guy my mother worked with totally drove!

      • Me too. One of my colleagues passed her test (and she was my colleague, not the-ds-lady-I-worked-with). She was a great driver and fantastic at her job. Our service users LOVED her, and I mean LOVED HER. They would fight to have her assigned to them for the day. The only thing she was unable to do was write a report at the end of her shift, but she dictated it to one of us and we wrote it on her behalf. I’ve known profoundly dyslexic people do the same. She was everything a carer should be and more and it was a privilege and a pleasure to work alongside her.

    • Rio Smith says:

      In Louisiana the DMV says she can’t. BUT she’s only 14 weeks old. So I’m not too worried about it right now. :-)  We’ve been looking to move to Austin in the next couple of years anyhow. So we should be good! Thanks!

  16. Patricia Almeida says:

    It can look black and white for now, but your life will become even more colorful than it was before!

  17. you will never believe how many people will be jealous of your baby’s spirit! happiness, love and a peacefulness not found in “normal” babies. So much love.

  18. LUZ WILLIAMS says:

    a special baby for special parents God Bless You!

  19. My 8 year old son asked me, what’s so special about having down syndrome.  I said, babies with down syndrome are very rare, not everyone gets to have one.  We are blessed.  Then my son said, and mommy they are so cute too.  Yup!

  20. Rio Smith says:

    From my
    best friend while we waited a week for Sabra’s DNA confirmation:

    As a
    hospice nurse, I deal with patient families’ mourning loss every day. So
    me of
    them are mourning loss of a loved one to death, some a physical loss as they’re
    moved into assisted living homes, some to loss emotionally due to dementia or Alzheimer’s.

    You, in a
    sense, are mourning the loss of the ideal you’ve built up, for long time, about
    your child and the type of parent you’re going to be. It’s OK to feel like you’ve
    lost something. It’s OK to let yourselves cry and mourn what you feel you have
    lost. It doesn’t mean you’d change anything about your child, or that you love
    her [him] any less. It’s human to feel this way and OK to face how you feel.

    Once you
    get that out of your system, you’ll not only feel better, you’ll be more able
    to see what you’ve gained. When it comes to children with special needs, you’re
    either a special parent or you’re not; God decides that for us.

    • I have said this at times to people (not new parents) – just the fact that I felt like my child had died, and now I had one I still had to take home. I have never meant it rudely, but I have gotten such odd looks from people. Thank your friend for this insight……..it is spot on!!!! 35 years later, I wouldn’t trade a day of this journey, but it was refreshing to read your comment and think “yes, someone gets it”. Thank you!!

      • Laurie Buhlig says:

        Wow! It’s great to know someone else felt the same as I did when we found out our Rachel had the “characteristics of Down syndrome” by the geneticists. At first we cried and we were sad and scared…then we held her, looked at her, fed her, changed her & fell in love with her again..by the time we left the hospital, in my mind, I was just so thankful that I got to take home a living, breathing, LIVE little baby. Some people aren’t so lucky. And almost 13 years later, as Rachel walks through the house pretending to be a “Zombie”, (it’s almost Halloween!), I still feel the same way.

  21. Beth Hontzas says:

    Three years ago we took 2-week old Athena in to The Bell Center for Early Intervention in Birmingham, AL. Our lovely director, Betty Bell, told us then, “She’ll be the light of your lives!” And she couldn’t have been more on target! God was speaking to us through her! So proud to be her parents!

  22. Congratulations! Your life is about to change in so many positive ways….This diagnosis is a little scary at first because of all the unknowns for your child’s life but it will also be the most amazing journey of love you will ever take. It is a blessed life that few are choosen to be touched by…..enjoy every second of it with your child. The love and joy that my son has brought to all of our lives and families lives is immeasurable and we would not change one thing about him……He is a sweet and treasured soul with so much joy and love to offer!

  23. paulodonoghue says:

    You’re in for the ride of a lifetime. You’ll realize that all is right with the world. Your little one is about to teach you the way life should be lived. Full of love and joy.

  24. This is verbatim what one of my friends said to me after Daniel’s diagnosis: “A. Congratulations! B. My sister has DS. And I promise, it is all going to be ok. Better than ok, GREAT. It really is.” It really meant a lot coming from someone who knows what a life with Down syndrome is like. 

  25. Kerry Vega says:

    I would pass on the amazing words that my Dad said to me and my hubby when we found out at 20 wks pregnant that Kayla would have Down Syndrome, “God only gives special kiddos to special parents.” Those words have comforted me during many hard times. It’s an amazing journey. Enjoy every second of it!!!

  26. I deeply feel your feelings, I was chocked, sad, feeling guilty, and so scared when I recieved my daughter’s diagnosis as well, it was after her birth, although we had some tests during pregnancy but we only discovered this after her birth, I still have some scares and guilts when I think about tomorrow for her, but I totally trust and believe that God will always be with her, the only thing I am sure of is that I do love her more than anyone can imagine, her older brothers, her grandparents, her aunts and cousins adore her, now we forgot about this DS diagnosis and we see her as a very normal and lovely baby, and I totally believe you will feel the same someday.

  27. It is ok to feel sad, scared and worried , these feelings are perfectly normal. It doesn’t mean you love your baby any less. Keep asking questions and don’t take the .. Because they have downs syndrome …. Have high expectations and you and your baby will thrive ! There are lots of people in your boat, you are not alone, they will help you if you want them to .Look after yourselves and be proud . You have got an amazing child and you are amazing parents xx

  28. Gndmellin says:

    Of course it’s overwhelming to hear anything about ur baby that u weren’t expecting but as a parent of a little girl w DS it was a blessing. She surprises us every day with the hings she does and says naked us smile m laugh often every day. There’s nothing better than a Happy child! Just enjoy every minute n celebrate everyaccomplishment

  29. Bruna Fava says:

    When the child is 17 years, they will be as happy as our family is with my sister. She have a boyfriend with Down syndrome and wants to be a massage therapist! (Sorry for my terrible english. I`m brazilian)

  30. Donnie Tolliver says:

    Your present fear will turn into life-time GRATITUDE!  I wouldn’t have it any other way.

  31. Musability says:

    You are the luckiest mama EVER!  You already know that that in your heart and soul because you have carried this child for 9 months.  So, keep telling your child, “I am the luckiest mama, EVER to have you in my world”.  In time, the child’s father (who is not often on board to the trip to Holland) will one day hear your voice and begin saying to your child, “I am the luckiest daddy, EVER!”  Eventually, dad’s figure it out, it just takes lots and lots more time!

  32. Malena Vazquez says:

    Itis OK to be scared, in time you will see this is a good thing happening to you. He/she will be your teacher.You will learn from him about unconditional love, to live in the present and to enjoy the small things in this beatiful life.

  33. Debby Eisinger says:

    You’ve just begun an INCREDIBLE journey.  Words don’t always come easily so go to http://www.inspires2aspire.com and see a young man with Down Syndrome who has started his own greeting card business.  

  34. Congratulations, you will experience more love than you’ve ever imagined!

  35. Samantha LaBossiere says:

    4 words: “Okay. Let’s do this.”

  36. Just to add the perspective of someone who is an atheist and friends with many who follow minority faiths (Hinduism, Paganism, Buddhism, etc), if you are going to make a comment concerning God’s plan, Biblical verses and so forth, make sure the person you are speaking to share your faith. As, while most of us will understand the good intentions behind your words, it does create a bit of an uncomfortable situation for many of us, just as it would for many of you if someone of those minority faiths said, “May the Goddess bless you!”/”May Thor give you strength!”/”Remember the words of the Buddah”/etc. Not trying to nitpick, just popping in to remind everyone we are a world of many beliefs and that should be respected, especially during a time when someone may be going through quite a bit.

    Otherwise, these look great!

    • Couldn’t agree more. I feel a bit uncomfortable if someone mentions God. I had a nurse tell me once just to trust the doctors and Jesus and not ask questions. I think that’s a stupid thing to say. Even those who believe in Jesus must have questions about what happens to them and the people they love when in hospital. I don’t think it was very helpful.

  37. Congratulations on your new baby!  I’m so excited for your new adventure. Wanna go buy some really cute clothes?!   :)

    • hahha….. GREAT RESPONSE! :)

      Thanks for sharing.

    •  (Baby clothes, that is…)

      “It’s OK.  It may not feel like it now, but it’s so much more than just OK.”

      “You’re giving birth to an amazing child, not a syndrome full of negative stereotypes and medical issues.”

      “Some days you won’t even think about Down syndrome.  It won’t be the first thing you see on her face – sometimes you’ll wonder if other people can even see it because you can’t.”

      •  “Raising him/her will be so much like raising any other child (or your other children) that you’ll be surprised.  She’ll be more alike your family than different.”

        “You will laugh and love like never before.”

  38. Deborah says:

    I would say embrace the gift you have been given. Enjoy the life long ride, the good with the bad, and ask as many questions as you possibly can. There will be bad day and there will be good days but always in between, there will be the most amazing days you ever imagined  :)

  39. Justine says:

    I don’t have a child with DS (unfortunately!!) but I do have a child with severe Autism. One of my closest friends has a little boy with DS who we all love. And I just wanted to add to the list… ‘Congratulations! You have just won the lotto :) You may not think so right now, but this is the best thing that could happen to your family. The whole new world you are about to enter is amazing and real, and you’re gonna meet a whole lot of amazing, real people. Your beautiful baby is going to teach YOU what life is all about. Enjoy, cause they grow up wayyy to fast!’ xoxoxoxo

  40. What an awesome compilation these great fans have built! You are such a great voice in letting the world know how great ALL kids are!

  41. Sue Lin says:

    God has blessed you with the greatest love and sweetest innocence on this earth.  Congratulations…you will enjoy wonderful blessings on a daily basis!

  42. Asterhabte says:

    You have been chosen to take care of this angel. And you thought your life was going no where. This angel will take you to place you never imagined possible!

  43. You don’t have to mourn anything or take a trip to Holland..There doesnt have to be disappointment.Your plan was to be a parent,nothing has changed.Everything will be ok.

  44. We are excited for you! Even though you may have anxiety now, we believe you’ll soon see this unexpected news is a huge blessing from God. We can’t wait to meet him/her! Let us know if you want to talk about it more.

  45. GMcLaughlin says:

    I know there’s no such thing
    as “luck”, but you ARE the luckiest people in the world!! I’m 13 years
    into this journey, and I’m telling you it IS possible to fall in love
    your child over and over again. There IS something special in that
    extra chromosome and I know only God knows what that is, but I strongly suspect it’s pure LOVE, from God Himself. Be at peace
    knowing that your child will continuously amaze you and deepen your
    capacity to love. Welcome to our wonderful world—we’re GLAD you’re
    here and can’t wait to meet your bundle of unbridled joy!!

  46. There is only one thing to say ” CONGRATULATIONS!!!” And maybe warn them that one day they will sing the Itsy-Bitsy Spider sooooooo much, that their finger tips may bleed..

  47. Danielle says:

     8.5 months ago I had no
    intention of having a baby and neither did my husband. 8 Months ago, I
    found out I was pregnant unexpectedly. I was horrified. (terrible to
    admit I know). 6 Months ago we were told our baby had a cystic hygroma
    and only a 10% chance to survive. I
    prayed for the baby I didn’t know I wanted. 5 Months ago our son was
    diagnosed with Down Syndrom through an Amnio, and we learned through
    follow up that his hygroma had resolved. In five weeks, we will hold in
    our arms a baby who has taught us so much about appreciating unforseen
    and unrecognized blessings, and the miracle that all children are. I
    believe we have been blessed with an amazing journey…. and I am so
    thankful for this blessing that we didn’t realize we needed.

  48. Christana says:

    I have an almost 11 year old gorgeous son with Down Syndrome, and he makes me proud everyday to be his Momma… he’s funny, caring, helpful, smart and he has an amazing love that he shares with everyone. He has made me, and everyone that loves him a better person. I know it is scary at first, but you will love him more than you could ever imagine!!

  49. Rochelle Wilson says:

    Congratulations! He or She will change your lives forever…for the better!! No longer will you take milestones for granted, and the cute faces, aw, the cute faces! Enjoy the great privilege God has given you in this life. :-)

  50. Kridgle says:

    When my screening test came back positive for DS, the most amazing thing that anyone said to me was a father who had a two year old daughter w/ DS. He told me that if there was a cure for DS that could make his daughter what everone else thought of as normal, he would not allow her to have it, because she was already perfect in every way, no matter what anyone else thought. The way that he loved his little girl, looked at her, held her, and played with her reassured me that this dx was a blessing!

  51. Antonette says:

    God has blessed you with a gift of “LOVE” that is beyond words.  Everyday you will find new and exciting moments filled with love, smiles, and happiness.  Enjoy every second!!!

  52. This wee babe with Down syndrome will be one of your greatest blessings  and your sweetest Treasure, believe me! I have loved and raised a Darling Sweet Daughter, i would not have traded her for anything, she was PERFEC T and I was given a Miracle the day she was Born. love you forever Alicia
    oxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxo
    Your Forever Mom
     

  53. You will think that you are so busy teaching him/her, but it will only be in hindsight that you will recognize that it was they who was teaching you all along. – VM (This is the true life lesson that my own child, born with Tetrasomy 18p Syndrome, taught me.) <3 Samantha Martin, SAMANTHA'S LAW <3

  54. Laurap100805 says:

    A wonderful metaphorical story for all parents of special needs children:

    A Trip to Holland By Emily Perl Kingsley I am often asked to describe the experience of raising a child with a disability — to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this… When you’re going to have a baby, it’s like planning a fabulous vacation trip to Italy. You buy a bunch of guide books and make your wonderful plans… the Coliseum, the Sistine Chapel, Gondolas. You may learn some handy phrases in Italian. It’s all very exciting. After several months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland!” “Holland?” you say. “What do you mean, Holland? I signed up for Italy. I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.” But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay. The important thing is that they haven’t taken you to a horrible, disgusting, filthy place full of pestilence, famine, and disease. It’s just a different place. So, you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It’s just a different place. It’s slower paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around. You begin to notice that Holland has windmills. Holland has tulips. And Holland even has Rembrandts. But everyone you know is busy coming and going from Italy, and they’re all bragging about what a wonderful time they had there. And for the rest of your life you will say, ” Yes, that’s where I was supposed to go. That’s what I had planned.” And the pain of that experience will never, ever, ever, go away. The loss of that dream is a very significant loss. But if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things about Holland.
    Read more: http://www.city-data.com/forum/special-needs-children/798646-trip-holland-legally-autism-baby-parents.html#ixzz1rBvk458a

    • Thias peom brings tears to my eyes, EVERY TIME I read it. I would definatley say that a new parent of a child with DS needs to hand this somewhere that they can look at it from time to time. My husband and I had a chance to meet Emily Pearl Kingsley, the author of this poem, and she told her story of when her son was born and the flowers on the wall next to his changing table and all the doctors being so negative about her keeping him. And she told about how a case worker came to her and said..it may be far fetched and seem impossible but if your willing to try it out, there is this new thing called….Early Intervention. And her son has now written his own book with a friend and Emily is the writer of the “special needs segments” on Seseame Street!! She autographed our copy of the peom and we also have “baggage claim tickets” that read Originating to…Italy, Destination….Holland.
      We mourned for quite awhile and I do look back now and think WHY? Our 25 month old is amazing and he is such a joy in our lives..and the best thing- I love how (since he is our last child) I can enjoy those milestones longer! He just started walking and Ive loved how long it has taken because kids grow so fast, that you will soon forget those small details. Please know, things will get better than you first thought…love your child just as you expected to anyway. DS is not a diagnosis, it truley is a blessing.

    • Thank you! I’m a newbie to this site and was trying to figure out what all this Holland business was. :)

  55. You are about to have an Angel born into your family! That us what I would tell someone, my aunt had Down Syndrome and she was the sweetest, kindest best friend I ever had. God puts people like her in earth to teach everyone exactly how to love and he only puts them into the lives of people who He knows is strong enough to take care of one of His own.

  56. Dan & Mary Kirsch says:

    A dear priest friend said to me, the grandma: “God is revealing himself to you in a whole new way.”   This has been so true…little William gives  us so much love and increases the love we have for each other too!

  57. Nikkiey says:

    Congratulations! Another way for God to show that he doesn’t make mistakes , but he only make masterpieces.

  58. Welcome! You have found that path you always passed by and said “hmm! I wonder where that leads?” Well for all of us it is a slightly different experience but it leads us to the same conclusion. It is one filled with a kind of love that empowers you from within. Beware though it is a bit bumpy but well worth the ride. Just take each day one day at a time and you will soon see that God gave you your very own angel.

  59. You know what? EVERY milestone you complete will be sweeter and the world will be so much richer for you when you experience life threw your child’s beautiful eyes. Congratulations ! If there’s anything you need just ask.

  60. Rosalina says:

    Rick Smith, thank God for giving you Noah and thank you for what you are doing.  What a great way to start the journey – with the right words and mind-set.  My doctor in Evanston, IL, told me something that made me feel that there was nothing to worry when I asked him what it meant to have a baby with Down syndrome.  He said “She is just like any other child.  She just has an extra chromosome in her cells”.  Then, he gave me a list of the early intervention agency and Gigi’s Playhouse – a Down Syndrome Awareness Center in Chicago.  Now, I’m back in my country and paying it forward by setting up a special needs awareness center to help parents get a head start.  When people come in, I tell them how cute the baby is (just like what you would do to any baby), they can see Gabrielle and know that four years down the road, their child will be able to do the same given the love, care and early intervention.  What a blessing, indeed!!! In my country, not so many people read English and mostly Budhists who felt that having a child with challenges is the result of their karma in the past.  We are trying to help them look forward and move on. 

    May I translate some of the comments and post on The Rainbow Room’s site and few other local DS support site to help others?  Names of contributor and the credit will go to Noah’s Dad, of course.  Once again, my great admiration for your work.  Your family is chosen.  Praise God!!!

  61. Sweetyoder says:

    I would say congrats on your new baby. You have a lot of love to look forward too. I would not say God will not let you have the devils child. Like whet was said to me about my son

  62. Jen Towell says:

    We found out at 13 weeks into the pregnancy about Joey having Down syndrome because he had hydrops and a septated cystic hygroma as well.  About 8 weeks later we found out about his heart defect and that he would need open heart surgery.  When we found out about him having Down syndrome we were told that because of all of his other health issues he would only have about a 2% chance of surviving the pregnancy.  Well, he not only survived, but he is thriving and gives us meaning and hope every single day.  I was so worried at first about having a baby with Down syndrome.  How would I take care of him?  How would we know what to do?  Then I read a book called “Road Map to Holland” and the author said something to the effect of all you have to do is love him.  I carried that with me through the entire pregnancy and even now.  I would tell a mama to be that despite all the fear and worry, your number one job is to love your baby and the rest will fall into place.  Hugs– Jen

  63. Like others have said, it’s ok to mourn the child you *thought* you were having. Go ahead and say goodbye to that child. Then say a big hello to the child you *do* have because he or she will amaze you every day! You will not take life for granted, every day will be an adventure, and every milestone however small will be celebrated. There will be doubt, fear and challenges. Just like with every child. Educate yourself, educate others, be your child’s best advocate (and you may find yourself advocating for everyone else’s child too!) and dump anyone who says your child “can’t, won’t, will never” (and that includes medical professionals who should know better). It’s not a club I ever wanted to join, but now that I’m a member I wouldn’t change it for anything. My son is 10 now and as his unaffected twin brother said when they were 4 “I think he got the extra chromosome from me so we could always be together no matter what.” Whoever called it LOVE Syndrome was right on.

  64. Jennifer Smith says:

    When a person is diagnosed with an illness or disability at some point in their life they do not immediately become that illness or disability. It does not define them. When I had my daughter I was completely unaware of her diagnosis before her birth and I was not going to believe it until the test came back positive. I am a nurse and I was completely disgusted by the way DR’s teach by the negatives, telling only what might not be. I was not willing to listen. I am glad. My daughter is Cadence Moran, she is not Down Syndrome. She walks, runs, plays, she communicates, she laughs, she sings, she annoys her sisters, she throws tantrums, she loves and she is loved. She will grow up and she will have the opportunity to persue the things she wants, she will live on her own even if it is in a group home. She will go to prom, she will have crushes, and as an adult she will love and be loved. No one can tell me what she will and will not do, no one is going to decide on her future but her.
    My daughter is Cadence Moran and she is LOVE, she just happens to have Down Syndrome.

  65. janice lesueur says:

    Almost 14 years ago the woman who has become my dearest and closest friend had her fourth child. I knew that the family was expecting a baby girl and quite excited. After the baby’s birth I heard my now friend speaking with someone in the post office. The discussion was about when the baby would be having surgery. As the mother of a toddler who had already had about 10 surgeries, I spun around and wanted to know what was wrong the baby/ My friend told me the baby had Down Syndrome and the associated heart condition and would need surgery before she was 3 months old. My heart broke — not because of the DS but because of the medical complications and impending surgeries. I probably did not say the “right” thing but all I could see was her parents putting the baby in the arms of a nurse in scrubs, so I just said, ” I am so very sorry. What can I do to help you?” My friend understood my words and concerns. Sometimes it isn’t the exact words but the love behind them!

  66. I think it would depend on when the parents found out and what their reaction was. I don’t have a Down Syndrome child myself, but I have worked with a lot of people with an extra 21st chromosone. I can honestly say, my life has been better because they were in it. I’m the lucky one. I’m not religious myself, so wouldn’t be comfortable mentioning God. If the parents were ok with it, I would say the same as I do to all new parents – congratulations. If they weren’t, I would say “You have a beautiful boy/girl. You might be on a different journey than the one you thought, but it’s going to be a fantastic journey. That hasn’t changed. It’s ok to acknowledge that you wanted something different for your child, but your child is no less beautiful, no less special and I know will be no less loved. You’re going to learn so much from your child. I hope you enjoy every moment. I have no doubt that you will. Congratulations on the birth of your beautiful baby”.

  67. Michelle Cowart says:

    Allow yourself to grieve. Allow yourself to rejoice. You will love your baby and your baby will love you. Congratulations and Welcome to this amazing journey!

  68. Ooohhhh boy, not all r cut out 4 that. Hope u make it thru.

  69. Thank you so much, this web site has been an inspiration to me and has helped me find the light at the end of the tunnel. It is nice to know that I am not the only person in the world going through this or feeling the way I do. It’s great to see such a support network is available, and to know that there is always someone to talk to if needed.

  70. Often after I got our news I was told that “God chooses special people to raise special babies” and that always made me feel better :)

  71. Amy Waits says:

    The day our Taylor was born was a complete rollor coaster. As the doctors rushed our little girl to the nicu my husband and I was a complete mess. I kept telling my mom and my husband I never heard her cry why isn’t my baby crying ? My husband RAN to the nicu and the doctors walked him back into my room . The doctor told us our little girl has down syndrome and some other medical conditions. My heart broke into a million pieces. We had our whole family plus all our friends at the hospital waiting for our daughters arrival and we had to face everyone and tell them. Well my husband and I decided that we needed to tell our parents first then they can tell everyone in the waiting room. When the doctor told our parents my dad walks over to me and kissed me on my forhead and told me not to cry that his baby girl will still be his fishing buddie. That moment forward I didn’t cry but rejoice what the Lord has givin me. How lucky was I to be special enough in God’s eye’s to give me a baby that he made fearfully and wonderfully made!! God does not make mistakes and he choose each parent wisely! I will forever be grateful to my Dad to open my eyes and show me that she was perfect no matter what and with my family and exceptly with God All Things Are Possible!!! The thought of my baby girl having down syndrome never crosses my mind. She perfect just the way God made her!

    New parents out there that has a baby with Down Syndrome remember Down Syndrome is only a medical term and it does not define your child. It’s the way you will raise your child in believing that your child is fearfully and perfectly made. God never makes mistakes :) And they will always be your fishing buddy!!!

  72. Hi Rick! Thanks for this amazing resource. I hope it is ok with you that I share this link on a new blog I created called, “Supporting families diagnosed with Down Syndrome”. I see you have a ton of resources as well and hope to add your page, http://www.noahsdad.com to the list of resources for parents, families and friends.

    Our best friends’ baby was diagnosed with DS about a month before birth. She’s here now and Phoebe is the most amazing person in the world. My partner and I felt, and still do at times, uneducated on how to even speak with them about their diagnosis. This reference was given to us and we have launched from there. Thank you for being here to support us supporting our friends with the best and most beautiful addition to their and our lives!

  73. nazia khalid says:

    My baby is forty days old today. During this period I have visited almost hundreds of web sites about DS. Some are helpful and some terrifying increasing your anxieties. Noahsdad.com is the most beautiful ,colourful and helpful website. It will remove pain from your heart and make you light heart. No doubt there are challanges to raise a child with DS but still a child is a child he will make his place in your heart and your life will be normal again. Just pray to God may he help you and make things easy for you.

  74. Down syndrome children are amazing. They are full of love and affection, there will be hard work ahead and it might not seem like it now but you have been blessed with a child more precious than you could ever imagine. Just remember not to worry all they need is love :)

  75. I would likely say, “Congrats, she/he is cute! Can I hold him/her?”

  76. I don’t have a child with downs but I’ve found that the children and adults that do have it are the most loving people in the world. I honestly believe that those who do have a child with downs are the most blessed people in the world because god entrusted them to raise his little miracles of absolute love. They should feel blessed.

  77. Acknowledge and accept your grief for the baby you were expecting. The sooner you get that out of the way, the sooner you can accept your child for the beautiful being that they are. And your child is a Gorgeous Soul with a unique gift to share with the world – starting with you and your immediate family. My special needs son has been an inspiration and made me a better person in ways I don’t know if I could have experienced any other way. My sister’s DS child has done the same for her. Yes, it is hard sometimes and sometimes you feel alone and isolated from the parents of typical kids who may not understand the particular challenges and the kind of life long commitment a special needs child deserves. Be angry and sad and whatever other “negative” emotion creeps in when you thought you had accepted everything about your new life. Then remember you are not alone. You have the chance to really learn how to accept your child for who they are and what they can accomplish in a way not everyone is challenged with. And you can get used to anything even dealing with delayed potty training or no potty training because you will love your child more than you can imagine. You will be a stronger person for loving your special child as he/she opens your eyes to a new world. Love and Hugs! Call when you need advice, a shoulder, to vent or any other cars on the rollercoaster you need someone to join you on.

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