Categories: Resources

Help Your Child Learn To Self-Feed: A Few Quick Tips For Children With Down Syndrome

Noah’s 11 months old in today’s video and we decided to try and let Noah self feed today. As you can see he really enjoyed it (as we did his mommy and daddy.) I thought I’d share a little bit about our experience with allowing Noah to self feed for the first time for any of you getting ready to try this with your child.

It’s messy

I am not going to lie, my biggest fear with starting self-feeding with Noah was the MESS. I have seen this kid eat off a spoon and it isn’t pretty, so I could only imagine what he will do when he is in control. So the first step in deciding to let your child self-feed is getting a really good mop and lots of paper towels. It also helps to let them eat in only their diaper…your washer and dryer will thank you later. I have all but abandoned bibs as they only keep one section of him clean and Noah is able to target every area outside of that with excellent precision.

When to start

I quickly realized that I had no idea what I was doing or where to start. It is best to try self-feeding when a child is able to support themselves while sitting. Since this is sometimes delayed in children with Down syndrome I don’t think they need to be sitting on their own so much as being able to sit well when supported in a feeding chair or high chair. They also should be able to reach out and grab things and have fairly good aim at their mouth.

When they start doing this with toys, they should be more than willing to do this with food. They should also be making some chewing movements with their mouth, they don’t need teeth, but they do need to know what to do with a more solid food. Teeth will determine the consistency of the foods you will try. If your little one does not have teeth yet you’ll want to stick to easily mashed items. It’ll also be easier if they are interested in what is on your plate while you are eating.

Noah started grabbing our drinks and food which made me realize that maybe I needed to give him his own plate.

I don’t suggest starting with an apple. 🙂

When we were introducing solid foods with Noah our pediatrician recommended to start with puffs, a classic. They dissolve almost instantly in the mouth and are easy to handle. I think our OT was a bit shocked when we told her with excitement that Noah was advancing his diet. I couldn’t quite figure out why until we tried the puffs. These things are not quite as easy to pick up as they look. As hard as Noah tried, he could not get them to his mouth himself. We gave up on self-feeding for a little while after that as I assumed that he was not ready.

Type of grasp determines food choices

I finally had an epiphany one day when I was at my best friend’s house.  She knows all the cool stuff people are trying and had a book lying around called The Baby-Led Weaning Cookbook: 130 Recipes That Will Help Your Baby Learn to Eat Solid Foods – and That the Whole Family Will Enjoy, by Gill Rapley and Tracey Murkett. (Long title, huh?) I was skimming through it and with their help it finally clicked what I was missing. I needed to match Noah’s grasp development with his foods.

Puffs are for those who have a great raking ability and more importantly a pincher grasp which typically develops around 9 months when children usually start eating more solid foods. The average age of a child with Down syndrome having a pincher grasp is 20 months. The reason I wrote the post on grasps is because I had just figured this stuff out and knew I would be referencing it now as I talk about feeding. Noah is still at a radial palmar grasp which makes puffs pretty hard to pick up.  I had set him up for failure because I didn’t figure out his grasp prior to giving him foods.

Foods to start with

The book mentioned above has a great table matching grasp type with food choices. They recommend starting with large stick-shaped pieces of food. I started with bananas. They recommended making it look like an ice cream cone with the peel still on with the banana exposed at the top. Noah grabbed onto that, brought it right to his mouth and started gnawing on it. See…if I just put the right thing in his hand.

Some other options are veggie straws which are basically tube-shaped puffs, larger pasta with a shape that is easy to grasp like rotini, or cutting long narrow pieces of bread. Using long pieces allows the child to hold an object with an edible section exposed that can easily be put in the mouth. Compare this to the puff which gets hidden in the hand and has to actually be released into the mouth. The teething crackers, such as the ones we are using in the video, are also great as they dissolve easily and stick out of the hand since they are fairly large.

Animal cookies are always a favorite.

Next you can advance to foods that your child can pick up in clumps. Think rice, mashed potatoes, apple sauce, mac and cheese (do see why you need a good mop) and one of Noah’s favorites eggs. These are offered when your child is doing a raking grasp. Puffs can be offered at this time as well.  When we started with these Noah was still eating the parts that were on top of his hand and not so much releasing it into his mouth.  I however believe that this helped him realize that if he opened his hand there was more goodness inside

You can get smaller and smaller as the grasp develops to where some day instead of your child picking up a clump of rice, he is picking up the individual grains.

Likely will not get all of their nutrition at the beginning

I did not rely on Noah to get all of his intake from self-feeding alone.  I would give him some things to play with as give him meals by spoon feeding in combination with milk.  As he starts getting better I will stop giving him things off a spoon as much. You need to have a balance, and it may take a while before your child is able to eat enough on their own.  This is ok.  The whole point at the beginning to to be exploring not necessarily providing nutrition.

The Gag Reflex

Your child will gag. They are supposed to gag. You want them to gag. It will scare you. You may have your hand on the phone for 911 before you realize that your child is ok. Gagging is not the same thing as choking. Choking cuts off the air supply where as gagging gets a chunk of food out of the back of the throat so that it can get worked on some more. With choking you will not hear many sounds from your child and they will likely be changing colors, now is the time you want to shout “Annie, Annie are you ok?”, get your child out of their chair, put them over your knee and give them 5 back slaps to help get that item out as well as call 911.

However if they are trying to gag an item of food up, give them a few seconds and it will get there. Starting with mushy or slippery things helps the child swallow without problems. I have seen Noah swallow whole noodles before without difficulty. Chicken on the other hand causes us a lot of problems with gagging as he tends to not chew it enough. (NOTE: If you ever have any concern that your child is choking, or not able to breathe, you need to call 911 immediately. Additionally if you have questions or concerns about this please be sure to talk with your pediatrician, as this post is not and should not be taken as medical advice.)

Patience

I thought that letting Noah self feed would speed up the feeding process…I was very wrong. It has slowed it down, but that’s ok.

Noah eats his meals with us as usual, and I try to give him whatever we are eating plus or minus a few things. He likes to shovel the food in so we have to place it in front of him slowly. It is great to share eating times together and has finally brought my husband and I to the dinning room table rather than eating in front of the tv.

Offer variety

I know that several children with Down syndrome have problems with textures in their mouth. Your OT or ST should be helping with these issues. I encourage you to offer as many different textures as you can. Also try all sorts of different fruits and vegetables so that your child gets used to eating them. It can take something like 7 exposures to a food before a child will accept it as something they will eat. I find parents often just give the child what they know they will eat rather than branching out and trying new things.

It’s very easy to get into a routine. Obesity is a big risk for our kids, and getting them to eat fruits and vegetables now will only help them in the long run.  I noticed our friends over at The Fun House always offered their children fruits and vegetables at each meal, and their children devoured them.  They definitely inspired me to be well aware of what I am putting in my child’s mouth.  Do we venture out to pei wei and pizza…sure.  But they are being eaten with a fruit or veggie on the side. 🙂

What foods did you try with your child first?  What were you afraid of most?  What challenges have you faced with feeding?

Noah's Mom, MD

Noah's Mom is a pediatrician and the mother of a child born with Down syndrome. She enjoys helping people understand Down syndrome in a clear and easy way, and sharing what she has learned along the way. Be sure to stay connected.

View Comments

  • Great post from Dr Mom :) - is that an opportunist doggy friend in the footage hoping that Noah doesnt learn the art of self-feeding too quickly!!

    • Ha,ha...you better believe it.

      The funny thing is Noah and the doggy (Gizmo) have already become "partners." Noah's learned the dog will be his best friend if only he'll lower his hand at give him a little yummy treat. ha,ha..

      It's cute. (But a bad habit to get in to.) :)

  • This was a great post and I wished I had it when I started feeding James. I was so scared. Even though he is my 4th child, I felt like I did not have a clue. James loves to feed himself. He has only 1 tooth at 14 months so we are still limited a bit by what he can eat. But he loves eggs, mac and cheese, mandarin oranges, bananas, grilled cheese.

    • I love mandarin oranges as an option too. We haven't tried a grilled cheese...we might have to do that for lunch today.

  • I didn't realize at first that some speech therapists specialize in feeding issues which, of course, can begin with bottle feeding, not just when self-feeding. People would always ask me why my infant needed speech therapy not realizing that the speech therapist helped with feeding and oral motor exercises to be sure the child was learning to chew properly, to chew on both sides of the mouth, to use his tongue to clear food from his cheeks and the roof of his mouth. Who knew there was so much involved in simply eating? It's a grand adventure! BTW, my son has a doggie partner in crime, too! They are best buds! =)

    • We used feeding therapy in the beginning too. Insurance has a hard time figuring out why a baby needs speech therapy too :)

  • Thanks guys! Awesome timing for us . . . We are just 9 months behind you all and super thankful for your site and info. As baby Noah blazes the trail ahead of us you have continually been one of the best resources we have found :) We have been "swiping" puffs onto the floor for a few weeks now which while tons of fun provides little self feeding success . .. and the gagging thing was freaking me out. Looking forward to trying some new ideas!

    • I hope they work!! Gagging will always freak you out, but it does get easier to let them try to get the food out of their throat before slapping their back :) Let us know how it goes.

  • My little guy, who has Down syndrome, will be 11 months in a couple days and we are doing Baby led solids with him too. we started once he seemed ready at almost 9 months. He has no significant delays so far so he was sitting well and reaching for everything. His therapy team is amazed how well he is doing. It is amazing what these kids will do if you just give them the chance!

  • abby i strip aimee down to diaper only n i got old sheets n made a poncho like thing to put on her it covers all of her . and for the floor i use the other sheet in the set . so all i have to do is toss them in the trash if to messy or in the washer .. she loves puffs n bananas i cut up into slices i havent tried apples .she loves eng peas too she squishes them then licks her fingers . i learned also the hard way to put on one of her hats to protect the hair cuss some how the fingers find their way to the hair every time .lol thanks ofr the video .

    • Apples aren't the best first option which I quickly learned. The cookbook had recommended them but noah snapped off a piece and quickly gagged. I think they are probably good when there are not too many teeth and they are basically gumming it but when you can bite it it requires some serious chewing. :)

  • Great article--Thank you for the great suggestions. My little guy (9.5 months) is ready to self feed, but I have only given him puffs for self feeding. The poor little guy just can't get those darn things into his mouth! I will try some of your other suggestions. I totally forgot about the pincer grasp often being delayed. Thank you! I'm sure my little man will thank you too!

  • Thanks so much! Our Janie is 5 months now and is still just getting breastmilk from a bottle, but I trust that we will be venturing into other foods soon. She's bringing toys to her mouth constantly and sucking and biting on her thumb, fingers, and anything that gets near her mouth! Our OT and ST said we needed to wait until she was sitting until we tried any solids. I will look into the feeding chair you mention above and see if that's an option for us.

    • The pediatrician in me is going to come and recommend waiting until 6 months :) which is because of food allergy stuff. we used our carseat initially for feeding the once Noah was sitting better went to that chair as it reclined. Your therapist may have great recommendations.

  • My Otto is just 7 months. We are having constipation issues...so we are going slow with the feeding. I'm pureeing as many veggies as I think he might eat adding textures slowly. He loves acorn squash, pears with goat's milk yogurt, carrots and peas...and everything else he tolerates. I need to get him some more avocado to keep things moving. Or mango. The blueberries worked too. I love to make him food and then stick it in my ice cube trays and freeze it. Then stick it in a baggie and label it. So much better than canned food! I think we are a year behind you so thanks for all your tricks & tips!

    • I liked making my own purees until I got to meats and got grossed out :) We have constipation issues as well, but since starting more veggies and fruits it has gotten a lot better.

  • Thanks for this post. Our little boy with DS is doing so great in so many areas at 23 months (walking, saying a few words) but he does not self feed. He furthermore doesn't even like to eat "table" foods. His diet is entirely baby food.

    As soon as he puts a piece of table food in his month - say, for instance, a banana, his long tongue goes crazy and he forces the food out of his mouth with it. If something does get to his throat, he gags a lot. We've been giving him time to try and self feed every day at lunch time, but he hasn't made a lot of progress recently. He just "spits" the food out with his tongue every time. Of course we'll keep trying, and eventually he should get it!

    • have you tried self feeding with the purees? I know it is messy, but he can get his hands in it and get it to his mouth. Noah does love a good apple sauce bath :)

      • Funny you mention that -- we actually have tried that recently with apple sauce, and it worked pretty well. Of course he was a mess, but he put some in his mouth. I guess we are wondering how to get him to even eat "table" foods, even without self feeding. He pushes all that food out of his mouth with his tongue immediately. Our OT hasn't been much help. We are considering finding a specialist.

        • I would. I would probably go to a speech therapist who has a bit more training in this area. Usually speech therapist focus on either feeding or language so you will just have to ask if they feel comfortable with feeding.

Published by
Noah's Mom, MD

Recent Posts

Bitty and Beau’s Coffee is Coming to Waco!

Bitty and Beau’s Coffee is an amazing nationwide coffee shop chain that is much more… Read More

3 years ago

This Is Why You Always Want to Invite Noah to Your Wedding

Ever since we took Noah to his very first dance party many years ago, this… Read More

3 years ago

This is One of the Most Important Words You Can Say to a New Parent of a Child with Down Syndrome

One of the first things our OB/GYN told us after we received our son's Down… Read More

3 years ago

How the Peloton Bike Helps Our Son Stay Healthy

Before the pandemic, my wife and I were both members at Orange Theory Fitness (and… Read More

3 years ago

I Met a Mother with Down Syndrome and Her Child!

As the parent of a child with Down syndrome, I have wondered if people with… Read More

3 years ago

Here’s Why We Love Noah’s Miracle League Soccer Team!

I Love Being His Coach! After 18 plus months off due to COVID-19, Noah started… Read More

3 years ago