If you’ve been following our story you may recall that Noah’s pediatric therapy sessions were upgraded this past summer to three times a week. Since that time they’ve even been re-upgraded to four times a week! (This little boy works hard!)
Thankfully one one of the day we’ve been able to schedule Noah’s occupational and physical therapy visits on the same day which is nice since it means that we only have to drive to his therapy appointments three times a week instead of four. Truth be told since Noah has such great therapists who are committed to helping him succeed, we don’t mind taking him at all…even if we did have to drive there four times a week. We’re just thankful for all the incredible therapies that are available today for kids like Noah.
It’s so much fun watching this kid grow and develop. I hope you don’t mind me repeating myself over, and over on various posts on this site…but as you can probably tell…..I’m crazy proud of this little boy! This kid works out more in one thirty minute therapy session than I do all week. I know that’s not saying much, but just check out a few of the exercises he rocked by hitting the “3-awesome-physical-thearpy-exercises-in-one-visit” trifecta! Wouldn’t you be proud? 🙂
He makes it look so easy...!
We’ve already talked about the effectiveness of an exercise ball for children with Down syndrome so it should go with out saying that we think it’s awesome! It can greatly help with your child’s balance, reaction, core strength, propping, and lots more!Not to mention it can be combined with one of our favorite toys for a cheap and easy physical therapy exercise you can do at your own house.
"I got this." -Noah
Only 10 months old, and already rocking the treadmill!
Noah recently started doing treadmill training, and we think it’s great! Dr. Dale Ulrich and his team at the University of Michigan are doing some amazing research on the effectiveness of using treadmill therapy for children with Down syndrome and autism. According to his website their research is helping to,
“….maximize physical activity, motor skill development, community participation, and quality of life in children with Down syndrome and autism.”
Wow…Now that’s the sort of stuff that gets me excited about the future of children born with Down syndrome!
I’m thankful for organizations like the School of Kinesiology at the University of Michigan, the Stanford Down Syndrome Research Center, the Pierce-Shimomura Lab at the University of Texas, the Down Syndrome Research and Treatment Foundation, and countless others. Their cutting edge research is helping to improve the quality of life for all children, not just children born with Down syndrome and autism.
Walk backwards...? Sure, why not!
In fact it’s research like theirs that makes this the
“Best time in the history of the world to be born with Down syndrome!”
(As someone lovingly told me shortly after Noah was born.)
"This swing stuff is for babies...." -Noah
There’s not much I need to say about the swing. It’s a swing. It’s awesome. It’s helpful. Noah can’t get enough of it. The swing rocks……The swing is typical. Can you tell we really like the swing? 🙂
It’s fun watching Noah reach out and grab the big ropes that hold the swing up. His tiny little hands barely wrap around them….
"I think I can, I think I can, I think I can...." -Noah
…but that doesn’t stop him! This kid is determined. And I love it!
"I knew I could, I knew I could, I knew I could." -Noah
Now you see why we are so ridiculously proud of our little boy? Man, oh man how we love this kid.
What sort of things are your children doing in their therapy sessions these days? Do you (or have you) used any of these exercise tools with your little one before? How did he or she (and you!) like them? I want to hear your story.
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The treadmill looks so hard. Way to go Noah before you know it he'll be chasing a soccer ball. Love his expressions. He's doing so much work but it's not making him sad or frustrated. That's great therapy.
Thanks! It is pretty hard, but this little boy handles it like such a trooper. It's amazing. He inspires me every day. :)
We had an issue with insurance last year, so Warren hasn't done PT or OT since last March. New year just started, so after Warren's doctor's appointment on Friday I'll have shiny new referrals, and we get to go back to the therapists we love. We've been working on jumping, going up stairs alternating feet, and kicking a soccer ball. I think standing on one foot comes next. :)
Yikes, sorry to hear about that. We've had our fair share of insurance issues so I know all about that.
So glad it's all been worked out, be sure to let us know how things go once he gets back on the ball with this therapy sessions....(Get it...back on the ball...therapy...ha,ha!)
You guys are doing such a great job. Keep it up. Warren is blessed to have such loving parents. I love that! :)
You know.....I find myself cheering out loud for Noah each time I watch a pt video. We are taking Milania in for her early intervention evaluation on Tuesday and im so.excited to hear what they have to say. I pray she has great therapists and they become champions for her like me & her dad. These kids inspire me! Frankly, I think Noah is stronger than I will ever be...that exercise ball looks tough lol
Thanks so much, we really appreciate that. We're excited for Milania and you guys also. Please keep us posted on how everything goes!
And yah...that exercise ball is tough! But our kids are soooo strong! :)
Keep up the great work.
Hi! I just recently started following your blog and was just curious- why do you have to take Noah for PT and OT? Don't early intervention services in your area come to your home?
Great to meet you, and thanks for your comment.
We live in a large city so there are lots of different therapy options here. We take Noah to a private therapist that we really enjoy. We tried some other therapists when he was born but just weren't happy with them.
Not to mention we don't have a huge swing, or a treadmill at our house. So we really enjoy Noah having access to such a wide range of tools. :)
We opted for private therapy for our daughter for many of the same reasons. We found a fabulous Neurodevelopmental Charter school that did some very innovative things when our daughter was young, she is now 16 and has found memories of the "fun" she had there. Lots of great resources for anyone willing to do some homework, and we found many ways to make it happen. As my mom used to say "when God closes a door he opens a window". Love reminising with Noah and you all. The future is bright.
I recently stumbled across this blog, I love how you can see the love you and your wife have for your son in Noah's eyes. Noah is a true inspiration and I'm so glad I found this blog. Noah's smile lifts my spirits and I look forward to reading this blog every time I hop online. All my best to you three, from San Diego :o)
I've got to admit, I'm a bit jealous of your amazing therapy! I had to fight to get OT once a month and PT once every 6 months (small town - no options). That's just one more reason why I enjoy your blog so much - I get more ideas of things to try at home and be working on (Kaylen is 14 months, but I feel like she's missed a lot of things that Noah is working on currently).
Love it! My little love bug is 4 1/2 and this brings back good memories of all those PT sessions! Loved our therapists... looks like Noah loves his too!
Keep rollin' Noah!
It saddens me to know that not all kids with Down Syndrome are getting access to the great therapy that will make such a difference in their lives. My son, Kyle is 11 years old and he did have access to Early Intervention and they came to us which was a blessing since my husband and I both work outside the home. I see Noah on the big yellow ball and it brings back memories of Kyle on his bluish green ball. I am struck by how much Noah looks like Kyle did at that age...not just in his face, but in his mannerisms and his body shape.
I want to share a few stories about Kyle that I think you will enjoy. You mentioned Big WINS and the celebration of them. When Kyle was about 8 months old, it was Christmas time so we had our tree up. We were working on getting him to crawl and he was fascinated with the shininess of the tree. He would work really hard with his arms and make his way to the tree, not really crawling, but getting there none the less. So, I would let him get about 2 inches away and then grab his ankles and pull him back across the room. And so the game began. We did this over and over again that day and for many more days until about March when he could crawl to the tree faster than I could get to him and pull him back, so the tree finally came down.
You also mentioned working to strengthen Noah's core muscles. The other day, I was horsing around with Kyle. He was sitting on my lap facing me and I bent him backwards and poked his belly. I remarked to my husband how rock hard his stomach was. Certainly harder than mine, so I am jealous. It's amazing to me that we spent countless hours working to strengthen these muscles and it clearly worked.
One more story for now... Kyle started middle school this year. A few days before school started we went there to meet his teachers. One of them asked us if Kyle would be able to do the combination lock on his locker. I very quickly said, no, he had never even tried doing a combination lock. His fine motor skills are his weekness so we talked breifly about alternatives like using a lock with a key, or taking the lock off completely. You see, there is lot more to doing a combination lock than you think...grasp the dial, then turn clockwise, then stop at a very specific place (1st number), then turn counterclockwise past the 1st number, then stop at another very specific place (2nd number), then turn clockwise (not past the 2nd number), then stop at yet another very specific place (3rd number)...keep in mind that if you go too far you can't just go back, you have to start all over again (quite frustrating). I am exhausted just typing out the steps. We let him try a few times that day and he was totally frustrated as I expected. They wanted to let him try for a few days before we tried alternatives, which I agreed to, but I was uncomfortable about. I did not want him to be frustrated as he started this new chapter in his life. I was certain he was not going to be able to do it (not that I told him that or would ever tell him that). So before the end of the first week of school, his teacher emailed me to let me know that Kyle had successfully done his combination. He did it that day, the next day and every day since then. He was over the top proud of himself (as was I). And this is NOT the first time that he proved me wrong when I doubted him...you'd think I would learn by now.
I really admire what you are doing for Noah and now that I know about your blog, I look forward to seeing the great strides he will make with your encouragement. You are great parents!! By the way, Kyle has been watching the videos with me and he thinks Noah is adorable too.
Lisa
Well hi, lovebug Noah! Aren't you cute?! I started at the beginning of your story and can't believe how big you've gotten already. :) Hope you have a good winter! And btw, you rock at your therapy. :)
Yes he has! We are a "bit" behind. Just wait until you see the present day videos. :)
We love this little guy.
Thanks for commenting.
This looks SO familiar! Our daughter especially loved the swing. It was our bribe to get her to do other things that she didn't like as much - like crawling through the tunnel, or crawling at all, and eventually the much dreaded stairs. Noah is so adorable! I wish I could reach through the screen and give him a snuggle.
Now that B is 7 we're getting sneaky with PT - theraputic horseback riding, swimming and special olympics games... The days of direct therapy weren't easy for us. Lots of tears and frustration, and that was just me... She was not a fan! For all those still in the trenches, it does get easier, promise!
I can't say enough good stuff about the wonderful people who work in the field of PT, OT, not to mention ST which is where we spend most of our energy these days.
So awesome. Thanks for sharing!