I have come to the conclusion that getting over the mess is a big part of parenting. Noah is messy just eating with his own hands and today I am about to hand him a rocket launcher.
Ok, maybe not a rocket launcher, but close enough!
Until I had Noah I had no idea how important eating was to the strengthening of muscles in the mouth and eventual speech development. From breast feeding or bottle feeding to using a straw to moving solid food around your mouth with your tongue, all of this helps your mouth develop the ability to talk.
Check out those strong mouth muscles!
Noah was in feeding therapy for a few months prior to 6 months of age to help him drink from a bottle. He breast fed great but when it came to the bottle it was a different story, and this mama had to go back to work. He was actually deemed by his speech therapist as one of the hardest kids she has ever tried to feed simply because he wouldn’t hold still. Once we figured out how to stabilize Noah’s core and trunk he started to eat much better. We found that he actually ate best in his car seat which was handy. During this time time we got introduced to the Nuk brush and Z-vibe. They are similar devices and we have used them a variety of ways.
Amazon is actually one of the best places to buy the NUK Brush and Z-Vibe. You can actually purchase both of them by clicking on the links below.
One reason Noah improved with eating is that we started doing oral motor therapy. Theses are basically exercises and stretches for the mouth that help build strength. We used Beckman Oral Motor Exercises, but there are others available as well. One disappointing fact if that there is not a lot of research showing that this works, but in my opinion the research just hasn’t been done correctly yet. All of the studies that I found are pretty poor. I think it is definitely something to explore with your speech therapist.
The Nuk and z-vibe are excellent stimulation devices for the mouth and tongue. We were often told to wake up Noah’s mouth muscles simply by rubbing these devices around the mouth, on the cheeks, gums and tongue. It has helped Noah be able to brush his teeth and eat new textures. I know that texture sensitivity can be an issue for a lot of our kids and this is one way to work on helping the mouth tolerate new sensations.
Learning to eat (not) using his hands!
The nuk came in handy today as Noah’s first eating utensil. Our occupational therapist recommended this to us. The nuk is nice as it doesn’t matter which way it goes in the mouth and things like apple sauce easily stick to it. We didn’t have to worry about scooping or poking, it can just be dipped in the sauce and then straight to the mouth. Noah got the idea pretty quickly. Our OT showed us how to provide guidance at the wrist to help Noah know what to do. Thankfully no apple sauce was launched today.
Have you used the Nuk brush? If so what are some ways you are using it? For those of you in oral motor therapy what sort of tools are you using with your child? Leave a comment below and tell us about it.
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Thank you so much!!!! We have the nuk brush but I never thought to use it as a feeding utensil! Our ST also started seeing Liam at 6 months and this was one of the tools she gave us to stimulate his senses and focus on his mouth and closure around the spoon/bottle and swallowing etc. I let him use a soft spoon now but that is so hard for him to keep the purée on the end and it ends up being a gigantic mess! This is something ill be trying at lunchtime!! Thank you, thank you!!!
Let us know how it goes!!! I love the Nuk brush, I am sure there are way more uses for it.
I was just wondering how old Noah was at the time of the video. Our granddaughter, Alexandra is almost 21months. We haven't tried anything like this. She tends to just throw away what ever you put on the tray. Thought this might be the way to go.
Thanks.Sharon
Got an email asking for my email address.
It is jabe28@cox.net. Not sure this is where you wanted it.
I made comment this is replying to.
Sorry for the confusion.
Noah is 18 months when we started this...he has far from mastered it at 30 months :)
Thanks.
The picture is of Alexandra in the kitchen sink. She is such a joy!!
Hello. I just wanted to say how useful I find your posts. I am 27 years old & just had little baby Imogen last month, we found out she had DS at birth. It was a huge shock to us & I found your story when I was searching for info online. It's great to hear from a parent rather a doctor who basically just gives you medical statistics.
Thank you and look forward to reading more :-)
Emma
Emma,
First of all congrats on your little one! We'd love to see a picture. Feel free to post it in the comments.
Second, thanks so much for your kind and encouraging words about our blog! Does your little one have any siblings?
Emma, you have made a great decisión with your partner. There are days when I want to point my finger and shout at people to explain to them who Lulea is. There are days when I am just filled with joy because we have been blessed with this amazing daughter. There are days when I am so overcome with these emotions from this ride we have been on that it is hard to pick myself up. There are days when I can't stop staring at my girl and think wow, I was chosen to be her dad. There are days when I feel like I need to educate everyone on who Lulea is...she is not Down syndrome, she is the most amazing little girl who will capture your heart and teach you more than you thought was possible.
Congratulations!!! When I read your comment I felt like I read my story I'm also 27 yrs old and 2.5 months ago had a baby boy who was diagnosed with Down syndrome at birth. It was such a shock and I can relate to what you are probably going through emotionally. Even though I still cry sometimes I love my boy so much that I would give up my life for him and when he smiles it just melts my heart
What great photos of Noah using his own brush! How thrilled you all must be.
Our Lyra is 10 months old today. When she was three months old, she began speech therapy in an attempt to get her to take a bottle. We will never know if she didn't take it because of her Ds or her personality, though we suspect the latter because she breastfeeds like a champ. Our speech therapist taught us to use an infant gum brush and a Z-vibe on the inside of her mouth. We also used the Z-vibe above and below her lips.
After three months of daily exercises, Lyra still didn't take the bottle and we decided to move on. This was the first of what I suspect will be a lifetime of wondering if something is directly attributed to Lyra's Ds or her personality, though we strongly suspect the latter with the bottle. Nonetheless, these exercises "organized" Lyra's mouth and at six months she easily began eating solids. We use a "Maroon Spoon" and, at first, approached her mouth from the sides to minimize tongue thrusting. But now we can fly that airplane straight into the hanger!
While she still breast feeds, she now drinks from a Nosey-cup enough that I can leave her at daycare for a full eight hours, instead of just four. Along with baby food mixed with oat cereal, Lyra also eats off of our plates, including a variety of textures. She loves salmon and black cod!
Looking back, I'm grateful Lyra did not take the bottle because it was the reason we saw the speech therapist so early and I truly believe the work we did minimized any other feeding issues.
Good post! My little Sam is 22mos old and I was just talking to my OT about when to start letting her use her own utensil. I've been using the Nuk brush for about 6 mos now with her ST so this should be a great way to make that transition to an eating utensil. Can't wait to try it! Its great to see you posting again-welcome back :)
I hope it works well, let us know how it goes.
Hi Noah's Dad & Mom,
We have a beautiful baby girl, Cassandra, 9 months old in this picture. She is almost a year old now. I love all the info & insight your blog provides, you 2 are awesome parents. Cassandra is eating solids & drinking from a sippy cup these days. She is happy & healthy and we couldn't ask for more. At 4 1/2 months old she had open heart surgery to correct some issues, but is doing great since. We thank god everyday. Cassandra has a sister, Ellie, 2 1/2 yrs old & a brother, Lucas, 10 yrs old in July.
Keep up the great blog & I'm a huge fan on his Facebook page as well! I enjoy seeing Noah's pictures everyday, he's quite the super star!
sincerely,
Neddy Martinez
I love reading about Noah and your family. My Aunt told me about your site after my daughter, who is now 10 months, was born. Mya Early On teacher gave me a nuby brushing set a few months ago and told me to use it to help her learn how to fed herself. I wish I had listened to her sooner. We just tried it out on Monday and it was fantastic. Mya has a hard time bringing her hands to her mouth and holding onto anything for more than a few sec. But the nuby brush has an oval shaped handle that her hand fits right into and so she can't drop it. She still struggles but at least she has a chance now. We also learned that she needs to have a good support system to help her sit when asking her to use her hands.
I am totally going to try this, thanks for always educating and sharing your knowledge!
I'm reading with great interest, both as a mother of two (my younger boy is 25 months old) and as a preschool educator. My boys don't have Down Syndrome, but I can tell Lyra's mom that although my older was happy as long as there was food, my younger has been extremely picky, to the point of refusing expressed breast milk from a bottle unless it came from daddy. Our babysitter had to spoon feed him his milk.
Just a quick note to congratulate all of you for your wonderful children, and a sweet reminder that "typical" children refuse bottles, make huge messes when eating... basically Downs children are much more typical than you can believe! ;) Plus they are special.
What a great post and thank you so much for writing it as I know that self feeding is a huge challenge for many of our kiddos! We tried the NUK brush and the Z-vibe with my son around 24mos and didn't have much success as he was a real chewer and quickly destroyed both! Instead we used the ARK Grabber (firm model) which is also an oral motor tool and it's shaped like a "d" so it was easy for my son to hold, dip it into his food and get it into his mouth. Deacon is now five years old and manages with a fork and spoon with no trouble and there isn't much that he doesn't eat (except for things he doesn't like! :) Good luck and I'm sure you already know this, patience is key! It seems that just as soon as I'm getting close to giving up on a challenge, Deacon accomplishes it wonderfully in his own sweet way! Ya got love it!
Keep up with the wonderful log - you inspire so many with hope when they have otherwise so wrongly been given a bleak outlook! I sometimes wish that there was some way we could let everyone know how blessed we are to have these little angels among us!
Jackie
Hi Noah's dad,
Just like to say that your a real source of inspiration for my wife who avidly checks your blog for updates and has found
It usefull to pick up certain certain tips and tricks from you. Our beautifully daughter is about the same age as Noah and she (my wife) has been following you from the beginning. I am also a big fan of Noah and you now and will often ask her about the progress of Noah so it was nice when I asked her today about Noah she said you blogged after a little hiatus and all is well.
Aalia's dad.
She is the apple of my eye.