Noah's Dad

NOTE: This post is going to be a bit on a longer side, but it’s important. I want to encourage you to please take the time to read it all. Thanks!

The Problem(s)

When Noah was born over 7 years ago, we had a negative experience with our OB/GYN. As we’ve interacted with families of children with Down syndrome we realized that a lot of them seemed to have had a negative experience with their child’s Down syndrome diagnosis. In addition, we learned that a mother’s womb is the most dangerous place in the world for a child with Down syndrome, as over 60% of them never make it out alive.

To further complicate things, most medical professionals do not receive adequate training in medical school on how to deliver a Down syndrome diagnosis, nor do they have a personal relationship with anyone with Down syndrome. So you have medical professionals that aren’t properly trained on how to deliver this news, and don’t know anyone with Down syndrome, yet, they are tasked with giving a parent the life-changing news that the baby in the womb likely has Down syndrome.

See the problem(s) here?

The Solution

 

Over five and a half years ago my wife and I were sitting in bed talking about a way we could help families whose child was just diagnosed with Down syndrome receive encouragement and hope (and ultimately help more children with Down syndrome make it out of their mother’s womb alive.) On top of that, we wanted to find a way to help educate medical professionals and help them develop a relationship with someone raising a child with Down syndrome. We came up with a rough plan and a name (Hope Story.) I bought HopeStory.org, and we went to sleep.

Shortly after buying that domain I went to work for a large non-profit where I stayed for over 5 years, all while Hope Story sat on the shelf.

Fast forward to today and I’m excited to announce that as of May 1st of this year I have transitioned out of my job of 5+ years and I’m now the President & Founder of Hope Story, Inc. (A Texas Non-Profit Corporation.)

One of our goals is to connect every OB/GYN in America to a family raising a child with Down syndrome. We call these families Hope Advocates, and we think they could change the world.

Please take a few minutes to watch the short video below. This will give you an idea of the sort of impact a Hope Advocate can make. We hope to duplicate what you see in this video all across the United States.

How Will We Do This?

In short, Hope Story will be developing, producing, and distributing world-class resources to the medical community. We believe the best resource is another parent who is a little further down the road. We call these parents Hope Advocates. We will train, resource, and help connect these Hope Advocates to opportunities to share their story with people who need to hear it the most (families whose child has just received a Down syndrome diagnosis.) In addition, we have a medical advisory board that will help ensure the accuracy and excellence of our resources.

Take a few minutes to check out the video below, which explains the process in more detail.

We send out Hope Advocates a personalized Hope Kit packed with resources including customized cards (Hope Announcements) they give to their medical professional, along with Hope Advocate business cards their medical professional can give to their patients. Here’s an example of the Hope Annoucments.

 

Check out the Hope Kit contents here!

How You Can Help.

There are lots of ways for you to help us bring hope to others! I hope you’ll jump in on all of them! 🙂 If you have any questions about Hope Story, or how you can partner with us, please send me a message. We’re really excited about what’s in store.

• If you are a parent of a child with Down syndrome, become a Hope Advocate! As of today, we have over 1,000 people who are interested in becoming Hope Advocates. Simply read through the information on this page and enter your email address on the form at the bottom of the page.
• If you live in Texas, Delaware, Iowa, Idaho, Indiana, Montana, Nebraska, South Dakota, Vermont, Wyoming, or Louisiana, would you skip one Starbucks drink a week (2.50) to help Hope Story save the lives of babies with Down syndrome? If every person who is subscribed to this blog would simply donate 10 dollars a month, that could go a long way! As you can imagine it takes financial resources to do what we want to do, and we really need your help. You can click here to set up a reoccurring donation. Hope Story is a Texas nonprofit corporation. Our application for 501c3 status is currently pending before the IRS, and 100% of your donation will be used to help us bring Hope to Others.
• Visit the Hope Story Facebook page and share the cinematic trailer that’s pinned to the top of our page to your wall and encourage your friends to check out Hope Story!
• If you are a part of a local Down syndrome organization, drop us a line. We’d like to talk to you about how Hope Story can potentially help your organization connect with more parents in your community.
• If you’re a parent of a child with Down syndrome your and your child are a story of hope to someone else! We encourage you to grab an “I Am A Hope Story” shirt from our online store.
• Share your story with us! We may even feature it on the Hope Story blog.
• Follow Hope Story on Instagram, Twitter, and Facebook.
• Sign up for email updates from Hope Story by clicking here.

What Do You Think?

What do you think about what we’re working on and our plan to connect every OB/GYN in the United States to a family raising a child with Dosyndromeome? Interested in becoming a Hope Advocate, or in supporting Hope Story with a financial donation?  Leave us a comment and let us know!