A “Cure” For Down Syndrome? Researchers at Johns Hopkins Think They May Have Found One

Could there be a new “cure” for Down Syndrome? The internet is buzzing today after the September 4th edition of Science Translational Medicine published a recent study about how a team of scientists from John Hopkins University used an experimental compound to reverse the Down syndrome like learning deficits in mice. Fox news reports that they accomplished this [Read More…]…

Does God Really Only Give “Special Kids To Special Parents?” Spoiler Alert: Yes…and No.

This morning I posted the following comment on our Facebook page:

“The saying “God only gives special children to special people” is whack. Please stop saying it. #SpecialNeedsProTip :-)”

Boy, oh boy, I had no idea how much “Facebook controversy” that status update would cause, or how upset it would make some people.

Most people agreed with me, but a few didn’t. One person actually  left a comment saying, “I used to love this page ….[but] I really want to cuss you all out ..” LOL…Wow! You want to “cuss me out” because of a Facebook status update? Yikes! *hugs*

I never want to purposely upset anyone. And I also I realize that a few folks may have misinterpreted / misunderstood the meaning behind my comment so I thought I would write a blog post explaining the meaning behind my  Facebook comment this morning.

Does God really only give “special kids” to “special parents?”  The answer is both yes…and no. In other words, I think that statement is both whack…and un-whack.

Let me explain.

[Read More…]

How You Can Help My Son Not Get Possibly Murdered Over A Movie Ticket One Day #JusticeForEthan

Back in February I wrote about Ethan Saylor; a 26 year old man with Down syndrome who was murdered by police over a 12 dollar movie ticket. Ethan Robert Saylor went to watch a screening of “Zero Dark Thirty,” and after the movie was finished  briefly left the theater before walking back into the theater to watch the movie a second time.

[Read More…]

Sea World’s Special Needs Discount Program Is Epic! Here’s The Details.

This weekend we were invited by Sea World San Antonio to come check out their park (which has an awesome new water park!) and to learn about their special needs discount program. I had no idea Sea World offered discounts to families with children raising special needs, but they do, and it’s a great deal.

Here are some of the details:

[Read More…]

Milestone Alert: Noah Takes His First Steps!

As some of you (especially those of you follow our story on Facebook) may remember about a year ago Noah took his first steps! I was lucky enough to not be there 🙁 I was hanging out with my family in Colorado for a brief visit so of course Noah thought that was a good time to try out this major milestone. Thanks to technology I was able to witness it via FaceTime, and over and over again thanks to video.

[Read More…]