14 Ways You Can Make A Difference For Down Syndrome Awareness Month

Today kicks off National Down Syndrome Awareness Month which is an entire month dedicated to helping the world see what it’s like raising a child with Down syndrome (don’t worry if you didn’t know there even was such as “down syndrome awareness month, I didn’t either until after Noah was born.) 🙂

I personally believe every day is a great day for parents like myself to help others learn about some of the unique challenges of raising a child with Down syndrome as well as how much  children with Down syndrome have in common with typical children. However, I do think having an entire month specifically dedicated to raising awareness about Down syndrome is a fantastic jump start to help us remember that every day an great opportunity to rise awareness.

6 Ideas To Help You Make The Most Of Down Syndrome Awareness Month

For those of you who have ever wondered, “How can I help raise awareness for Down syndrome?” I wanted to give you a few suggestions to help you make the most of National Down Syndrome Awareness Month by helping people understand what it’s like having a child with Down syndrome!

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A “Cure” For Down Syndrome? Researchers at Johns Hopkins Think They May Have Found One

Could there be a new “cure” for Down Syndrome? The internet is buzzing today after the September 4th edition of Science Translational Medicine published a recent study about how a team of scientists from John Hopkins University used an experimental compound to reverse the Down syndrome like learning deficits in mice. Fox news reports that they accomplished this [Read More…]…

Does God Really Only Give “Special Kids To Special Parents?” Spoiler Alert: Yes…and No.

This morning I posted the following comment on our Facebook page:

“The saying “God only gives special children to special people” is whack. Please stop saying it. #SpecialNeedsProTip :-)”

Boy, oh boy, I had no idea how much “Facebook controversy” that status update would cause, or how upset it would make some people.

Most people agreed with me, but a few didn’t. One person actually  left a comment saying, “I used to love this page ….[but] I really want to cuss you all out ..” LOL…Wow! You want to “cuss me out” because of a Facebook status update? Yikes! *hugs*

I never want to purposely upset anyone. And I also I realize that a few folks may have misinterpreted / misunderstood the meaning behind my comment so I thought I would write a blog post explaining the meaning behind my  Facebook comment this morning.

Does God really only give “special kids” to “special parents?”  The answer is both yes…and no. In other words, I think that statement is both whack…and un-whack.

Let me explain.

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How You Can Help My Son Not Get Possibly Murdered Over A Movie Ticket One Day #JusticeForEthan

Back in February I wrote about Ethan Saylor; a 26 year old man with Down syndrome who was murdered by police over a 12 dollar movie ticket. Ethan Robert Saylor went to watch a screening of “Zero Dark Thirty,” and after the movie was finished  briefly left the theater before walking back into the theater to watch the movie a second time.

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Sea World’s Special Needs Discount Program Is Epic! Here’s The Details.

This weekend we were invited by Sea World San Antonio to come check out their park (which has an awesome new water park!) and to learn about their special needs discount program. I had no idea Sea World offered discounts to families with children raising special needs, but they do, and it’s a great deal.

Here are some of the details:

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