I Hate Petechia.

why does my child get petechiae it's scary

One of the biggest surprises after raising a child with Down syndrome these last (almost) three years is how little I actually think about Down syndrome. I’ve even written about how I often forget our son has Down syndrome. We’ve been blessed in that other than a few small heart issues, Noah’s been a pretty healthy little boy.

He’s doing well in school, meeting his milestones, and dancing all around our house likes a boss! Noah’s our first child, and for the last three years has been the only child in our house (although that’s about to change) so I don’t have another child to compare him to do. So being a parent of a child with Down syndrome is the only version of parenting I know. Raising a child with Down syndrome is my normal. And it’s all good.

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Noah’s First Time To Roll A Ball Back And Forth On The Floor…And The Laugh I Love!

kid with down syndrome playing with ball on floor

In my last post I mentioned how much joy it brings me to see Noah doing things that typical children do. When we first learned Noah was born with Down syndrome I remember wondering if I’d ever get a chance to play with Noah the way I thought I would before I knew he had Down syndrome…if that makes sense. In fact that was one of several fears I had about rising a child with Down syndrome…that never came true.

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What A UK Mother Of A Child With “Down’s Syndrome” Has In Common With American Moms…And How We’re All Like A Bunch Of Balloons!

what down syndrome parents have in common

 **The following is a guest post from Hayley Goleniowska who blogs at Downs Side Up which has been voted the Down Syndrome blog in Europe two years in a row. Her daughter Natalia (who was born with Down Syndrome  is a clothing model and  campaigns for ad inclusion.**

I write a little blog from the UK, called Downs Side Up and the guys at Noah’s Dad have always been a great source of inspiration for me. So you can imagine how enormously honoured I was when Rick asked me to pen a guest post for him as part of Down Syndrome Awareness Month.

But what to write?

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9 Lessons I Learned About Being A Good Dad By Having A Bad One

child-playing-water-klyde-warren-park

Father’s day is always a bitter sweet time for me. As I scroll through my Facebook and Twitter feed on Father’s day I see countless posts of people posting pictures of their dads with captions such as: “Thankful to have such a wonderful dad!” “Grateful for this guy’s leadership in my life!” “So glad to have such a wonderful father!” “I love this man!”

As I read these posts I always feel disappointment and sadness since I cannot post a similar post about my dad. The truth is I don’t ever remember my dad saying he loved me. Ever giving me a hug. Ever going to church with us (much less ever praying for / with me.) My dad didn’t teach me how to shave, treat a woman, how to tie a tie (or how to light a pilot light in a water heater….I just had to call the gas company to show me how to light man…I was scared. Those things look scary.) :)

I love my father, but the truth (sadly) is that my dad was not a good dad.

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