Recent Posts

When Christmas Isn’t What You Expected

A little over seven years ago we were surprised to learn, ten days before Christmas, that our first born son was going to be born with Down syndrome. (You can read his birth story here.) We had absolutely no idea that Noah was going to be born with Down syndrome, and (candidly) having a child [Read More…]…

snow tubing gaylord ice grapevine

Snow Tubing Brings Noah a Lot Christmas Joy!

The Gaylord Texan Resort (which is a huge hotel in our area) goes all out during the Christmas season. The entire resort is decorated for Christmas, they have a huge Ice exhibit that you walk through, an outdoor ice skating rink, and our kid’s ¬†favorite…snow tubing! Check out the video below to see Noah’s face [Read More…]…

av canal surgery down syndrome baby

Carson’s Atrioventricular Canal (AVC Defect) Surgery Story

(If you’re looking to meet other parents of children with heart defects, check out this Facebook group.) One of the most common medical condition associated with Down syndrome is a congenital heart defect. We talk about this and a few other conditions in Four Medical Concerns For Babies Born with Down Syndrome but we wanted [Read More…]…

brother with down syndrome-hugging

A Brother Makes a Great Best Friend

We’re in a sweet season of life here in the Smith house. Jaxten (Noah’s brother) is 3, Noah recently turned 7, and my wife recently gave birth to our new son (Koen) who’s almost 8 weeks old. As Noah and Jaxten have gotten “older” it’s been fun to watch them become such great friends. They [Read More…]…

Down Syndrome Resources

david saville clemson down syndrome football team

Meet David Saville, Clemson’s Equipment Manager (Who Also Has Down Syndrome)

I recently came across an incredible video produced by ESPN about a man with Down syndrome, David … [Read More...]

av canal surgery down syndrome baby

Carson’s Atrioventricular Canal (AVC Defect) Surgery Story

(If you're looking to meet other parents of children with heart defects, check out this Facebook … [Read More...]

More Down Syndrome Resources....

Down Syndrome Therapy

how to help child stand up on their own

4 Activities to Help Your Child Stand On Their Own

http://youtu.be/39iC8Wu1d8I We're proud to announce that Noah reached another major milestone … [Read More...]

how to get baby to use sentences put words together with sign language

Signing Update: Noah’s First Sign Language Sentence!

We're a huge fan of teaching Noah baby sign language to help him communicate with us. We have been … [Read More...]

More Therapy Posts...

Down Syndrome Parenting

meaningful work people with down syndrome

How a Chick-Fil-A Employee Changed My Idea of “Meaningful” Work

Last week I was eating lunch at a local Chick-Fil-A when I noticed a young women with Down syndrome working at this particular¬†location. (As a parent … [Read More...]

A (New) Letter To Our Son’s Teachers On His First Day Of School

It's hard to believe it's been almost three years since Noah first started to school (and we wrote our first letter to his teachers)...time really … [Read More...]

More Parenting Posts