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why does my child get petechiae it's scary

I Hate Petechia.

One of the biggest surprises after raising a child with Down syndrome these last (almost) three years is how little I actually think about Down syndrome. I’ve even written about how I often forget our son has Down syndrome. We’ve been blessed in that other than a few small heart issues, Noah’s been a pretty healthy little boy.

He’s doing well in school, meeting his milestones, and dancing all around our house likes a boss! Noah’s our first child, and for the last three years has been the only child in our house (although that’s about to change) so I don’t have another child to compare him to do. So being a parent of a child with Down syndrome is the only version of parenting I know. Raising a child with Down syndrome is my normal. And it’s all good.

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kid with down syndrome playing with ball on floor

Noah’s First Time To Roll A Ball Back And Forth On The Floor…And The Laugh I Love!

In my last post I mentioned how much joy it brings me to see Noah doing things that typical children do. When we first learned Noah was born with Down syndrome I remember wondering if I’d ever get a chance to play with Noah the way I thought I would before I knew he had Down syndrome…if that makes sense. In fact that was one of several fears I had about rising a child with Down syndrome…that never came true.

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fisher price laugh Learn count color gumball machine review

6 Reasons Why The Fisher Price Fisher-Price Laugh and Learn Count and Color Gumball Machine Should Be In Your Child’s Toy Box!

I’m always on the look out for fun toys that serve a dual purpose. I’m looking for toys that are  fun and that help my child learn and develop. Whenever I find toys like this, I call that a toy win! And I’m sure as a parent you like hearing about toy wins, so sit back, relax, and let me tell you about this one. 🙂

A while back I came across the awesome Fisher Price Roll-a-Rounds Swirlin Surprise Gumballs machine (which also made our list of the best Fisher Price learning toys.) To be honest, I’m not sure where I first saw this toy, but I’m guessing it was at one of Noah’s many occupational therapy visits. (I seriously think we have bought this kid every toy we’ve ever seen any of this therapists use! Can any of you other parents relate to this?) 🙂

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how to get your child down syndrome behave first hair cut

3 Reasons Snip-Its Makes Getting Your Child’s Haircut Fun, Not Frustrating

Today we took Noah to get his first real haircut. I say that because this was actually the second time we’ve taken Noah to get a haircut. I can’t really count his first hair cut as his first real haircut however since all he did was sit on my lap at the end of one of my haircuts and have my hairstylist give him a trim.

Oh and he wasn’t a fan, but really, what toddler really likes to get a haircut?

I’ve heard horror stories from other parents about their frustrating experience trying to get their child’s haircut, and I was worried how Noah would do when he had to actually get a real haircut. Thankfully, we found a place that specializes in giving kids haircuts, but not just that…they actually specialize in giving children with special needs haircuts! Pretty awesome, huh?

Check out the video below of Noah getting his first haircut from Snip-Its below then keep reading to see why we like this place!

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Down Syndrome Resources

chef with down syndrome YouTube channel

Cooking with Kitty: A YouTube Chef with a Dual Diagnosis

I love seeing people with Down syndrome (and Autism) doing awesome things. As a technology nerd … [Read More...]

companies that hire people with disabilities

46 Companies That Hire People With Special Needs

Before I became the dad of a child with Down syndrome I didn't pay much attention to companies that … [Read More...]

More Down Syndrome Resources....

Down Syndrome Therapy

how to help child stand up on their own

4 Activities to Help Your Child Stand On Their Own

http://youtu.be/39iC8Wu1d8I We're proud to announce that Noah reached another major milestone … [Read More...]

how to get baby to use sentences put words together with sign language

Signing Update: Noah’s First Sign Language Sentence!

We're a huge fan of teaching Noah baby sign language to help him communicate with us. We have been … [Read More...]

More Therapy Posts...

Down Syndrome Parenting

meaningful work people with down syndrome

How a Chick-Fil-A Employee Changed My Idea of “Meaningful” Work

Last week I was eating lunch at a local Chick-Fil-A when I noticed a young women with Down syndrome working at this particular location. (As a parent … [Read More...]

A (New) Letter To Our Son’s Teachers On His First Day Of School

It's hard to believe it's been almost three years since Noah first started to school (and we wrote our first letter to his teachers)...time really … [Read More...]

More Parenting Posts