When Christmas Isn’t What You Expected

A little over seven years ago we were surprised to learn, ten days before Christmas, that our first born son was going to be born with Down syndrome. (You can read his birth story here.) We had absolutely no idea that Noah was going to be born with Down syndrome, and (candidly) having a child [Read More…]…

Snow Tubing Brings Noah a Lot Christmas Joy!

The Gaylord Texan Resort (which is a huge hotel in our area) goes all out during the Christmas season. The entire resort is decorated for Christmas, they have a huge Ice exhibit that you walk through, an outdoor ice skating rink, and our kid’s ¬†favorite…snow tubing! Check out the video below to see Noah’s face [Read More…]…

Carson’s Atrioventricular Canal (AVC Defect) Surgery Story

(If you’re looking to meet other parents of children with heart defects, check out this Facebook group.) One of the most common medical condition associated with Down syndrome is a congenital heart defect. We talk about this and a few other conditions in Four Medical Concerns For Babies Born with Down Syndrome but we wanted [Read More…]…

A Brother Makes a Great Best Friend

We’re in a sweet season of life here in the Smith house. Jaxten (Noah’s brother) is 3, Noah recently turned 7, and my wife recently gave birth to our new son (Koen) who’s almost 8 weeks old. As Noah and Jaxten have gotten “older” it’s been fun to watch them become such great friends. They [Read More…]…

He Came Down | A Story of Hope

My wife recently told me about a video she came across¬†produced by “Speak Life.” The video shows a mom of a child with Down syndrome talking about how she feels. She explains she knows it’s not her fault that her child was born with Down syndrome, yet wondering why “this” happened to her. It’s very [Read More…]…