A Very, Merry Christmas, 2017.

I’m writing this blog post with a full heart and a quite house. After a great day of spending time with as a family (including my mom and brother who came up to hang out with us today), all of our children are asleep, and my wife and I are just hanging out on the [Read More…]…

To My Children (One Day), This Is What Happened When You Went to Sleep on Christmas Eve

To my sweet sons, I love watching your excitement and sense of wonder for Christmas. It was so much fun watching you get cookies and milk ready for Santa Claus, and carrots for his reindeer. You are now sound asleep. You can’t wait to wake up and see all of the loot that Santa left [Read More…]…

When Christmas Isn’t What You Expected

A little over seven years ago we were surprised to learn, ten days before Christmas, that our first born son was going to be born with Down syndrome. (You can read his birth story here.) We had absolutely no idea that Noah was going to be born with Down syndrome, and (candidly) having a child [Read More…]…

Snow Tubing Brings Noah a Lot Christmas Joy!

The Gaylord Texan Resort (which is a huge hotel in our area) goes all out during the Christmas season. The entire resort is decorated for Christmas, they have a huge Ice exhibit that you walk through, an outdoor ice skating rink, and our kid’s  favorite…snow tubing! Check out the video below to see Noah’s face [Read More…]…

Carson’s Atrioventricular Canal (AVC Defect) Surgery Story

(If you’re looking to meet other parents of children with heart defects, check out this Facebook group.) One of the most common medical condition associated with Down syndrome is a congenital heart defect. We talk about this and a few other conditions in Four Medical Concerns For Babies Born with Down Syndrome but we wanted [Read More…]…