Archives for 2017

Carson’s Atrioventricular Canal (AVC Defect) Surgery Story

(If you’re looking to meet other parents of children with heart defects, check out this Facebook group.) One of the most common medical condition associated with Down syndrome is a congenital heart defect. We talk about this and a few other conditions in Four Medical Concerns For Babies Born with Down Syndrome but we wanted [Read More…]…

A Brother Makes a Great Best Friend

We’re in a sweet season of life here in the Smith house. Jaxten (Noah’s brother) is 3, Noah recently turned 7, and my wife recently gave birth to our new son (Koen) who’s almost 8 weeks old. As Noah and Jaxten have gotten “older” it’s been fun to watch them become such great friends. They [Read More…]…

He Came Down | A Story of Hope

My wife recently told me about a video she came across produced by “Speak Life.” The video shows a mom of a child with Down syndrome talking about how she feels. She explains she knows it’s not her fault that her child was born with Down syndrome, yet wondering why “this” happened to her. It’s very [Read More…]…

Noah’s Growing Up

The picture above was taken shortly before Noah’s 7th birthday party, and he looks so grown up! The reason he looks so grown up is because he is growing up! In the years since I started this website, Noah has learned how to walk using treadmill therapy, sat up on his own, and even took his first [Read More…]…

What’s It Like Raising a Child With Down Syndrome in Tanzania

This blog post is part of our “Down Syndrome stories from around the world” blog series. Click the link to learn how to submit your story! 1. What Country do you live in? Tanzania, East Africa. We live right at the bottom of Mount Kilimanjaro! 2. How many children do you have and what are [Read More…]…